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zzyzx

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Everything posted by zzyzx

  1. I need to check in here more often I've had discussions with my primary care doctor about Metformin.... I used to run on the more constipated side. That hasn't been an issue since starting metformin. I do have to more closely watch my timing on that medication. Normally not a real issue, but it does make me looser..... I'm unwilling to go to a higher does than I'm now utilizing of that medication.....
  2. Finding a method that works for you and mentally accepting it is critical. Don't let the incontinence issues stop you from living life to its fullest.
  3. To start with, I put myself back in diapers when secondary nocturnal enuresis kicked in during a major illness. At the time, the doctor wasn't that concerned (due to the acute start up), but I "felt" something had changed. Once I was off the medication for the illness, I was left with occasional nocturnal enuresis that replaced occasional noctueria... At first I view the situation as short term and for the next year and a half tried to get the issue resolved, including spending time doing research in the local university's medical library. Let's just say I can sleep through the night time potty training alarms and wear out the batteries..... Eventually, I accepted that this wasn't going away. I also recognize that a part of me is a DL.... However if you had mentioned any of this prior to the start up of secondary nocturnal enuresis I would have given you a quizzical look and not known what you were talking about. A few years back, early onset BPH bit day time control, and now I wear all the time. I try to not use the diapers during the day, but at this point they are typically slightly damp by evening. I've accepted the need, and just get on with life. I've made a point of not keeping the diapers from stopping me from doing what I want to do.-
  4. On the rare occasion I wear a disposable (high capacity) diaper, during the day I do try to use the toilet, so either I need enough give in an elastic waste band to get the diaper down or I need to un-tape and tape back up afterwords. So, yes, now that BPH has added a daytime component, I prefer disposables that I can re-tape after using the toilet.
  5. At this point, if I get a good nights rest, and am properly hydrated, when I wake up in the morning I'll have a wet diaper that I don't remember when it happened. On a rare occasion, if my sleep is disturbed, well, I might be "aware" of some things going on, but I'll typically still be wet in the morning because my maximum functional capacity has been reduced due to impact of BPH.... And I get better sleep if I don't try to make it to the bathroom to empty the bladder at night.
  6. I don't think it is on the rise. In the past I believe it was more under reported. When I ended up with (occasional) secondary nocturnal enuresis years (decades) ago, I felt the statistics out of Israel were probably more accurate than most due to required military service.... The tri-state incontinence support site hasn't been online for some time, or I'd add a pointer to their graph of incontinence vs age with male / female split. Don't know if that could be dug out of the way back (internet archives) machine.
  7. While I only need heavier protection while sleeping or napping, since the cost of most of the alternative reusable products are the same as just buying the (cloth) diapers (and protective pants) that I use, I just go with a slightly lighter cloth diaper set up during the day. I can still use the toilet when I need to and it handles the issues I have from early onset BPH and related bladder issues. So, while it may not be what your looking for, its an option. You don't have to use the diapers when you can make it to the bathroom.
  8. @Brian Thanks for letting us know you are through this..... I'm sad that you had to advocate for yourself as much as you did. I expected you to have "fun" (not) with the prep, but not to the level it hit you. Best wishes.
  9. While I'm normally wearing cloth, on my last vacation I had both NorthShore's MegaMax and Tykables (blue) Camo, plus both companies doubler's. Neither completely work at night for me, however with Tykables doubler added (to either), most nights were good. Because I currently need some protection during the day, but use the toilet during the day, I found the Camo's easier to use than the MegaMax, with the doubler. That took care of the slight issue during the day and then the heavier wetting at night. So, one diaper per day.... If I ever loose more control during the day, I'd have to change how I do things. With the doubler up front, this was overkill for my normal needs, but it kept from hitting leaks at the legs when the front was well used earlier during sleep. Next time I'm on vacation (or preparing / evaluating for) again I need to keep @Slomo's comment about lower tape placement in mind and see if I can make an adjustment in how I use things to get better utilization of the rest of the diaper before it leaks.
  10. For me, I have quarterly blood draws, and one of the items in the list in the test results will show if I'm not hydrating enough..... And when the big boy was trying to kick in and get dry nights, it showed up in those tests. At this point, I would say I either stay normally hydrated, and sometimes drink a bit more (like when I've been sweating) and get slightly more hydrated and see the results in the morning.
  11. While I prefer to not advertise it, I also don't hide it. My cloth diaper supply is currently stacked in clear bins in my bedroom. And when doing laundry, you might find them in the dryer when I don't immediately fold and store them. I also have some packages of disposable diapers in the bedroom.
  12. @Dandelion: My current Urologist wants a urine sample at the beginning of every visit and performs a ultrasound scan to measure residual volume shortly after I leave the sample. It sounds like they want you to arrive with a full bladder so they can run some additional tests up front. As an engineer I've provided my Urologist some numbers (taken at home) that he normally doesn't get, so some of my actual tests at the office haven't been as extensive there..... (Plus my bladder capacity before BPH hit was larger than average....) Basically, I'd call the Urologist office and let the nurse know your concerns and get the doctor's feedback. Best wishes....
  13. @Dandelion Apologies for the delayed response. I have limits on how much time I can spend on this.... Before it started, I had 10 occurrences between my 7th and 13th birthday, and as a teenager there were two times (packing for a retreat and packing to go off to college) where the thought crossed my mind "What if I wet the bed?", as I never understood why on those 10 times. Later as an adult my second water bed taught me I was vulnerable to certain types of sudden temperature changes causing an urge in my sleep (that went unrecognized), so the main initial thoughts were something was wrong as I hit three times the first night and twice each night the rest of the first week. Called the doctor after the first or second night, but he wasn't concerned based on my past history. However I knew something had changed -- during the previous events it only would happen once in a given night... When it continued after getting off the medications, I noticed a short while later that how I "sensed" things had shifted for the second time that I noticed in my life. (Up until Covid-19, I haven't heard doctors concerned about how a person "senses" things - touch, smell, pain, etc. I've known since elementary school I was different from "normal" in this area.) And that change switch what was occasional nocturia into occasional nocturnal enuresis..... I spent the next year and a half researching information available at the local university hospital library trying to find more - but basically only finding information on (a) with women who I felt had small bladder capacities, and studies of youth (higher percent boys) trying to overcome the problem I was now having... And didn't find a solution that worked.... It did wake up the young boy in me.... And I did find the "little boy" in me never learned to dislike diapers. The "big boy" in me wants out of them, but doesn't know how.... The adult / engineer in me understand my control system and bladder is screwed up... and at this point accepts what is, Now, I've added the "fun" of early onset BPH to the mix. My maximum functional bladder capacity is reduced, and if I stay properly hydrated and get a good night's sleep, I'm going to have a wet diaper in the morning.... And I've accepted that.... Yes there are psychological items that go with that.... Best wishes on dealing with your issues.
  14. @Dandelion Welcome. Good that you are seeing your doctor soon. I expect they will take a urine specimen to help rule out a UTI. For me, "out of the blue" was many years ago when I started medication to get over a sinus infection. The combination of drugs used to knock out the infection had me triggering in my sleep every time I had a full bladder. And with pushing fluids to help clear the issue, that had me hit more than once a night the first week of the medication and at least once a night the following week. The doctor expected it to go away when the medication ended, instead I found how I sensed things had shifted again, and it left me with occasional nocturnal enuresis which I've dealt with since then. As a male, and with early onset BPH, my functional bladder capacity has decreased, and what was once occasional is now nightly if I am properly hydrated and get a good nights sleep.... Best wishes in finding a solution that works for you.
  15. I've had a urologist claim all men would have prostate cancer if they lived long enough..... However most men won't die from that.
  16. Ah, part of the reason I went with cloth diapers a long time ago. Add layers to handle the needed capacity to get a good nights sleep.... Yes, it is only recently I'm able to consider disposable diapers for night time use - and yes, that is due to the ABDL community for both the diapers and higher capacity stuffers (sp?).... I look for items that are functional in dealing with my issues and open to considering non-conventional sources....
  17. Not really worried / care about diaper sounds, but there again, I'm normally wearing cloth. I have recognized the sound of pee hitting the protective pants.... When I wet overnight (most of the time), I usually don't "finish" the mictrition cycle (i.e. voluntary controls are still in the relaxed state), so after waking up I can get a strong urge and start automatically re-leaving the bladder. And sometimes the first thing I notice is the sound of the strong stream flowing through the already wet diaper and hitting the plastic / vinyl / PUL / (or) rubber pants. So, yes, in a quiet enough room it might be noticed, but I think most folks wouldn't put 2 and 2 together and figure out what the sound was....
  18. The old Comco and VI Product's vinyl pants were cut to handle cloth diapers. I find most of the Gary pants not as good a cut.....
  19. @Incont / Mikey: <semi-joking suggestion coming> Time to switch to cloth (reusable) diapers?
  20. My usage started off dealing with secondary nocturnal enuresis, so started with wearing at night. Now due to bladder issues related to BPH, I also need some level of protection during the day, and mostly use the toilet during the day.... I won't claim to be "totally open" about this, and don't go around telling just to tell.... Parents (when they were alive) and siblings know, and a few others have been told how I deal with my issues. In general most folks, if they notice, won't say a thing. So, it typically doesn't come up. Otherwise, it is disclose as needed. The only time I've had someone comment on my diapers was while folding them (I wear cloth) after washing and drying them at a camp laundry while on vacation. A lady came in while I was folding, and commented that they would make good towels. I agreed they could, and then it dawned on her what they were, and that ended the conversation.
  21. First, I normally use cloth diapers... But when it comes to disposables, I need something that can take a flood (at night, or possibly napping, or maybe miss-timing on a trip / vacation) and can be slipped on and off during the day when I'm mostly dry.... So the elastic waste band comes in handy for that. And as to too strong a tap, well, mega-max gets interesting to try to use in the day as it is "fun" to try to untape that to use the restroom... Agree that I don't need a wetness indicator. Leak guards (for # 1) are needed to avoid leaks....
  22. @John Davis I've only had one negative reaction out of a doctor, and I wasn't wearing diapers at the time, instead asking for a prescription prior to ordering replacement (cloth) diapers for dealing with the occasional nocturnal enuresis at that time. Now, I've added on issues from early on set BPH, so, both my primary care and urologist have seen me in my cloth diapers (and protective pants), and generally no issue... Last urology appointment included a cystoscopy, and the urologist told me to leave my "shorts" on (while waiting for the procedure) instead of saying diapers....
  23. @Brian This is only my opinion. I have had two UGI procedures years ago and one LGI procedure more recently. For the LGI, yes, the prep is "interesting". I understand there are at least two styles of prep used to clear the colon. I can understand why you might want to use the hospital for the prep work. In my opinion that is the worst part of getting the procedure. I find typically, the doctors will use an IV delivered knock out drug for the procedure so you are "out of it" while they run the scope, and won't remember what goes on. With this medication you definitely need someone assisting you after the procedure to get home. If you normally drive, you need to not do that I think for about 12 hours after the procedure. You might be able to handle your normal assisted transit (for wheel chair transportation) on your own. I'd discuss that with your doctor / medical team to get their opinion on that. One of my sisters has done the LGI procure without that knockout drug without issues. With my lack of feeling pain (typically till you find the nerve and actually hit it), I probably could have gotten away without using the knockout medication. So, yes, in my opinion, the prep is worse then the actual procedure. For me, I had the oral stuff in a set of consumption in the evening with the colonoscopy the next morning. There was one occurance where I should have been closer to the toilet than I was. The rest of the times, I was better handling. My memory recalls drinking the solution in two rounds, I forget how far apart. By the end you are cleaned out, and will have no food from a certain time prior through finishing the procedure. Once cleaned out, I would expect you will only use your diaper for # 1.... As to diapers, number would depend on how you manage the prep. I will admit that you may want to bring more than you think you will need. The clean out can hit with sudden need to get to the toilet, and I can see where that would be a challenge for you. You will not be in a diaper while they scope. You'll have to ask them about how they want to handle urine in that situation. For me it wasn't an issue. I did relieve the bladder after arriving the procedure, and had no issues through getting dressed again to go home, despite having issues with (at the time occasional) nocturnal enuresis.
  24. Yes.Usually about once a year to get a prescription for various needed supplies, so that if I ever get questioned on FSA or other expenditures I have an actual written prescription showing need.However, not too much beyond that. Prostate check and general discussion on incontinence gets deferred to the Urology appointments.... First time was when the acute onset of secondary nocturnal enuresis hit when I started a set of medication to knock out a sinus infection. After hearing that I had (only a few) incidences of bed-wetting as a child, he figured it would "go away on its own" after the treatment for the infection was done. I couldn't get across that I felt something had changed.... As I kid, it only rarely happened, max once a night, and not on consecutive nights. Long store short, once I was off the medications, I figured out how I "sensed" things had shifted for the second time as an adult, and this time it changed occasional nocturia into occasional secondary nocturnal enuresis... Doctors still don't have a good set of tests for checking how a person senses pain, smell, touch, etc. I've known since elementary school that how I sense things (starting with pain) was different from "normal". I did get a urinalysis out of it (showing no UTI, etc.) and if my memory serves right, a short prescription for oxybutin which didn't help, and if wanted, a referral to a urologist. I ended up spending some time at the local university medical library on weekends (when parking was free) researching the available research on incontinence / enuresis at the time and really only found studies of (a) women with what I considered small bladders (8 oz holding) and (b) children (mainly boys) that still had issues with enuresis and the success / failure rate to overcome that. A later primary care physician balked when I wanted a prescription for diapers for the bed-wetting (prior to planning to use FSA funds). He went off the deep end on the fetish side. Needless to say I found another primary care doctor. Due to current insurance, currently have two primary care doctors (and need to transition to a third before retiring). One comes at no cost to use, the other was my primary care prior to the current employer opting in to a plan that has the zero cost primary doctor visits at a specific clinic. The older one has no problem with my discussing prescription needs, and that has included disposable diapers not originally designed for medical.... but do work better for me when cloth isn't the best option.... Reminds me its about time for my approximately annual discussion again...
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