All Activity

I have, but your exact underlying condition will affect how well the botox will work (or not). What is your diagnosis, and what exactly is your urologist trying to treat for? For me, I had severe urge incontinence and neurogenic sphincters (both internal and external). Basically, I'd get a sudden and painful need to pee but when I tried to relax to go my sphincters would clamp shut instead. Resulting in my having to push and strain against much pain, for even a weak stream. So my urologist first tried botox in my bladder wall to try and reduce my urges and give me time to pee. It did greatly reduce my urges, but deadened my bladder muscles so much I had an even harder time straining to go. I ended up catheterized for 3 months before it wore off. A second round of botox was then used on my external sphincter. Except that one made my sphincter even less responsive to my urges, so once again I was catheterized for another 3 months. Ultimately, my solution was a series of sphincterotomy surgeries. Each surgery opened up one of my muscles just a little more. It took 3 to blow away my external muscle and permanently open it up. And at least 3 more for the same to my internal sphincter. Plus a bunch more for strictures that formed from all the sphincterotomies. Which also ended up including surgeries for removing my prostrate and an inch of my urethra to really remove the strictures. 15 surgeries in total, over a year and a half! But hey, I now constantly drip pee without any urges, straining or pain. Don't let me dissuade you from botox though. I've heard plenty of success stories with it. It normally does fairly good to reduce urges, and/or to make it easier to pee. Though do take note, it often will not be a complete fix and only helps to reduce symptoms. It only works for about 3 months, so repeat treatments will be needed. And the body adapts to botox, so each treatment will be less effective than the last. Try it, but consider it a short term solution. And even if it does work, keep searching for a long term solution.

Just checked, you're active!

I clicked the validation button but my account isn't active. Is anyone else experiencing this?

Has anyone had experience with Urethral Sphincter or Bladder Neck Botox and can share their outcomes and discuss other treatment options you've explored with your urologist?

I had just changed into a fresh pull-up, which was enough protection in this case. Don't know the cause, but my stomach was kind of sensitive all that day.

Bummer. You don't normally get that, do you? And hopefully it was one of those "thank goodness I was already wearing a diaper" moments. I've had episodes like that myself. Usually from eating something that didn't agree with me, or being sick. Any idea what caused it for you?

After a rough night, I woke up late and stumbled to my office. Sat down in the chair and immediately soiled myself. No warning or ability to stop it. Not a huge mess but enough to be annoying!

Poor Shaq! He handled the ribbing well when he got back.

Unfortunately, needing to rush to the bathroom like that can hit anyone, no matter how healthy their lifestyle may be. It's interesting Northshore picked it up so quickly, but he is a high profile celebrity.

My current ultra-absorbent diaper is Rearz Mega Dinosaurs. They are ABDL diapers but the best overall diapers I have found. I went to a Nature Festival Saturday and though it was very hot I was comfortable and diaper held everything I threw at it. I ended up not changing until Sunday morning. It only leaked a little during the night. Never have had an issue with diaper rash either.

I understand your stress and worry, I've been there. In my personal case, I was always worried and psychologically tired, I hardly left the house anymore. I had no more positive improvement and I admit I lost the motivation to fight. I could no longer do anything without wearing protection. After a long period of adaptation, my daily life has evolved, I wear diapers day and night now, but I manage to have much more leisure time than before. I'm not saying it's a solution but my mind is much lighter now.

Too many greasy Shaq-a-Roni pizzas.

https://www.tmz.com/2025/04/23/shaq-adult-diaper-hookup-after-on-air-emergency/

I use to spend alot of time worry about my bowel and bladder but now I am in diapers 24/7, I don't anymore and I can get a lot of stuff done.

I used to spend a lot more time worrying about my voiding. From pausing to deal with the painful urges, to the extra time needed to push and strain just to go. At its worst, I actually had an alarm set so I could try and go to the bathroom every single hour. Now though, I usually don't even worry about it unless I get the rare leak. And changing each diaper takes less than a minute. Much less time than what I used to spend trying to use the bathroom. Not to mention the lesser frequency of changing just 2 or 3 times a day. So for me, diapers have been much less of a distraction.

From experience I prefer plastic backed diapers over cloth backed. I have yet to find a cloth backed diaper that preforms as well as plastic. I put my diaper on by standing with back to door, wall, or chest of drawers. In a stall I just pull between legs. Then Initial taping top lightly and bottom. I then look into mirror for final adjustment. That’s when I get top adjusted. Then I’ll pull slack out of the leg gathers and make final adjustment to the bottom tabs. I fold the bottom plastic below the tabs under before I apply the tabs to landing zone. Next I pull side panel up so that they don’t stick out the bottom sides. I may make one last tightening of the top. Landing zones are intended for this exact purpose. The last thing I’ll do is insure the leg gathers are sitting correctly by running fingers around the leg gathers. I don’t fuss about the top waist band front or back. The front waistband inevitably curls over the front. I also wear volleyball shorts to avoid sagging and plastic pants for added protection. If I ever need to do #2 or give urine sample I simply pull them down and up when finished.

How much time a day do you spend/waste worrying about your bladder and continence? Today I noticed how much I was aware of my bladder, and concerned about when to void to avoid accidents and leaks. Almost to a distracting level. It's enough to make part of me want to give in and just wear diapers all the time, though I still avoid that due to the cost and the principal of not giving up on my continence before I have to.

Be careful, some hotels will charge a hefty cleaning fee for a wet bed. Notifying the staff at or before checkin might not help avoid that fee, but getting a mattress protector added on will. Though plenty of hotels won't even bother with that. As such, I always bring 1 or 2 bed pads. I hav3 g99d washable ones, but disposable pads also work great for traveling.

I went on a 4 day retreat through a veteran’s association. When I got to my room I immediately checked the bed for a mattress protector and looked like it had one. After the director introduced us to the do’s and don’ts I privately asked if beds were protected and that I was incontinent. She said they were and if necessary tell her or the staff if an accident occurred and they would handle it quickly and quietly. Unfortunately I did not take my extended wear diapers and the second morning I woke to a flooded bed. They did as promised and handled it. Thank God! Speaking of mattress protectors. I have finally found a great one. After years of using the cheap vinyl ones that split without warning. Expensive ones that wear out way too soon. I found the best by far. It’s a PUL cover that has cooling technology. No more sweaty nights or crinkle. I bought one from Walmart and one from Target. They can be washed repeatedly and dried on low.

All adult diapers are is a support tool. Just like glasses or hearing aids. It’s not disgusting to use them for their intended purpose. We aren’t wearing them for pleasure. We practice better hygiene than most people. We live our lived just like everyone else. Incontinence doesn’t control us.

Today I had my yearly physical with my Medicare doctor. During the exam they never mentioned my incontinence. Afterwards they asked if I had any issues they should know about and I told them that I seem to be managing my incontinence just fine. That was it.

Ah, another veteran. I'd say welcome to the club, but the board of vet appeals? You TRAITOR!! No, just kidding. The appeals board fixed me right up with a 50% when my assessment Dr wanted to assign me 10%. It was a process, but glad it was in place.

Yup. A diaper must be thick and absorbent enough to ensure you will not have more than a minor leak once every 1 or 2 weeks. Now re-read that and let it sink in for a minute. If you leak every few days, then you need a better diaper. Catastrophic leaks, yeah you REALLY need a better diaper. No item is worth buying of it doesn't do as advertised. So don't even bother buying anything from a drug store or food mart. Some medical supply stores sell half-decent diapers, but really you need to be looking online. Hence those really high ISO numbers being such a necessity. As for that added protection. I personally recommend PUL pants like Gary Activewear or Northshore Trifecta. They add a little support against sagging, a decent support against leaks, and a lot of support at silencing noise and smells. Plus they are incredibly durable, and easily stand up to machine washing (but not drying).

Seconded. A thin diaper that has leaked is WAY more noticable than a thick one that has done its job. And most everyone is more busy with their own lives than we think. A crinkle that is noticeable to us simply isn't to most others. And as for the exceedingly rare who might notice, so what. It turns out almost none of them even care. But for the one that does take exception? Pitty them for their insecurity and need to lash out, then move on with your own life.

I woke up one day and had a blurry spot in my left eye. Long story short, I have accepted my new normal of being legally blind although I actually have low vision. I am legally blind in right eye. VA considers me legally blind so i’ve accepted that. I have since made so many friends within the Veteran’s community, esp. the BVA. I now have accepted incontinence as another new normal and have learned how to have fun with it (making lemonade). I no longer need to endure stinky port-a potty’s or share public restrooms with something that died. When I pee in public I smile to myself knowing no one is the wiser.