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  1. Last week
  2. I just got a "case" of 96 Molicare Premium Elastic 8D cloth backed diapers. I put the case in quotes because 72 appears to be a retail case. I got two oversized boxes with two packages of 24 diapers each. These have a strange design, and I can see what they were trying to do. Sadly they failed. The front panel is only slightly larger than the padding. When I was first opening the diaper, I thought it was a pad to stick in underwear. The rear side panels are normal sized, but have long elastic tabs to pull around your waist and Velcro to the front panel. The elastic isn't really strong enough to hold the diaper in place. It fell off in the morning as I walked to my bathroom. The sizes are also very large. I should have asked for a medium, not large. Most medium diapers fit, but are not comfortable, large fit better. These though are way bigger around the waist. They are single tabs on each side, but are very lightweight.
  3. Earlier
  4. I got in touch with CptKirk, thanks, he gave me some information, including the VA hosptial that he gets them through. I called the VA back and the Pharmacist told me that when she attempted to get NorthShore added to the National list it was rejected within a minute. Also other pharmacies have had the same thing happen.
  5. Ok, that's just funny. But I do know of other east coast veterans who are already getting Northshore Megamax from the VA. So at least you CAN get those.
  6. @Slomo I heard back from the Pharmacist. She explained that she is limited from ordering from a certain group of "medical suppliers," and can't just order from a website. She did find a cloth backed Molicare, but I'm afraid it won't be as good as the Tranquility. She is going to continue searching. I joined Spandi and DMed CptKirk and mentioned you, please vouch for me if he asks. The Pharmacist mentioned that all their computers got flagged for inappropriate websites while searching for adult diapers.
  7. Slomo

    Hello

    Hi and welcome. Yeah the diaper stigma from general society is real. But it's misplaced. There's nothing illegal nor immoral about needing diapers for a legitimate physical or mental need. Once you start treating them like glasses or a knee brace it gets much easier to move one and get back out there.
  8. Incont

    Hello

    Welcome, and thanks for sharing! That has to be annoying not knowing what control you'll have from minute to minute. I can see why protection would be a great relief!
  9. Lethdale

    Hello

    Hello, I'm Stanley, I'm 65. I have urge incontinence, OAB, prostatisis and a bladder neck obstruction which causes me a whole load of fun and games. Sometimes I'm 'dry'....sometimes I'm constantly needing to go. My problems began about 16 years ago and I started having accidents about 3 years ago. Trouble is, there's no telling how my bladder will behave from day to day....and, if I try to hold for too long, I find my flow clamps up and I can't go.. It's just easier to pad up and get on with things.
  10. I think you should go with what makes you comfortable. I'm in a similar boat....urge incontinence, OAB, a bladder neck obstruction and an enlarged prostate. I am constantly questioning my need....until I'm caught short and realise that padding up is a sensible precaution. We're conditioned to see shame in our predicament....which isn't much help if we're stuck in any sort of queue or place far from a loo. Shame (and the opinions of others) doesn't keep our pants dry and anxiety at bay. It's your life. Pad up if you desire to and, if you also gain a little enjoyment from your legitimate need.....all the better.
  11. I have the glasses, two pair actually one for distance, one for reading. No problems with getting them. I have a knee brace too. I even have a Rollator, the Physical Therapist just grabbed one out of storage and gave it to me. No prescription, no doctor's note. Just grabbed one. Yep, and I explained it to the Pharmacist. I even explained that the first Attends pullup I got wasn't even as effective as a Goodnite made for kids. She agreed. I actually talked to the pharmacist for a decent amount of time, explaining the problems with what I received. She seemed a bit embarrassed to ask some of the questions she did. Fortunately my Senator is a Vet and on the Veterans Affairs Committee. I'm hoping she can push something through to improve the situation.
  12. All of this seems so stupid though. And here is what I intend to tell the advocate as my complaint. If I need glasses I'm not limited to off the shelf reading glasses. The VA is happy to give me custom prescription lenses mounted in really good frames. If I need a knee brace, I'm not limited to cheap elastic sport braces you can get anywhere. Without delay or problem, I'm given high quality braces with metal hinges and strong velcro straps. But if I need diapers, I am only limited to the thinnest possible stuff you can get in most food stores or pharmacies. Or worse, I'm not even given a diaper, but pullups which are even thinner and have a lesser capability. It's easier to have them pull my teeth than it is to get a good quality diaper that actually works for my legitimate and service connected disability. But to really hammer this in, my urologist wants to get me the Megamax diapers. Yet the pharmacy is being allowed to dictate what a doctor can and cannot do. They have literally been allowed to set a gate-keeping policy whih limits the care we can receive. It is this discrepency I want addressed. Not just for me, but for every veteran that needs them.
  13. Thanks, I plan to do the same. I also sent a letter to my senator but it doesn't seem to have done anything. I did also put in a formal complaint with the VA advocate. The day after I got assigned a case number my urologist assistant called me. She said they were able to move forward with a Prior Authorization Dispensation (PAD). If approved I'd be able to get what I need. And FYI. CptKirk on SPANDI is also a veteran. He lives in Pensinvania and has been getting Northshore Megamax for years now. He says he had to go through EVERY pad, pullup, and diaper the VA has in formulary stock (which as you know is all crap). Only then were they able to approve them. So at least we know for sure the East coast VA can and does supply them.
  14. I just got off the phone with Ashley from the VA Illiana Pharmacy. She is the person looking into this matter for me. She received a message from my Senator after I wrote her. They are looking into what products they can get. I'll try to keep you informed.
  15. Yup. I have a case number assigned but haven't talked to the advocate yet.
  16. Have you tried talking to a Patient Advocate? They found me someone that knew about incontinence products, or at least what was available.
  17. I'm going through this same thing. Been trying to get a decently thick enough diaper, like Megamax. Except they keep sending me pullups. They're so far from what I need all I can do is throw them out as soon as I get them.
  18. My situation is generally different than others. I have intermittent bowel incontinence. So on some days the diaper will last all day, on others I go through several in a matter of hours. Admittedly the super poor quality of Attends means it's only going to last a few hours whether you use it or not, the same with the Cardinal Health and some of the others. They just will not stay on, used or not. I currently have a prescription for the Tranquility SmartCore, but I'm using 5 or 6 just because they no longer stay on. If you don't mind clothbacked, try the Why Worry , I was surprised by them. Not the top of the line, but certainly much better than the price would indicate. Someone from the local VA Pharmacy is supposed to get in contact with me. I'm hoping I can get either NS MegaMax Lite, BetterDry or BeDry. Those will last until I use them.
  19. It funny here too. I requested decent diapers through the VA (Megamax or equal). And they sent me 15 bags of Attends pullups and another 9 bags of Tranquality pullups. These things are so cheap and horrible you couldn't pay me to wear them (and the VA does pay me). There so bad I decided to save everyone else and NOT donate them to charity. They're all going straight to the trash.
  20. Uugh. NEVER look at the cost per unit! You need to look at it as a cost per day! Take the 1st and last as example. Trest @ $3.40 each versus Attends @ $0.84 each. Trest can easily handle 12 hours without any signs of leaking or discomfort. Attends can barely make it 2 hours (which is being very generous), and will already be leaking and feel wet. So. In 24 hours you use 2 Trest @ $6.80. Or 12 Attends @ $10.08. As you can see, Attends as a MUCH higher cost. Not to mention having to wake up every 2 hours at night so you can go change. Or dealing with extra leaks, time wasted changing, feeling and smelling worse, and on and on.
  21. I've recently tested the new Megamax USA V2 in medium. They have an ok rise to them. Still a slight bit too short for my preference, but there still the best I've come across. Skip all of the Chinese diapers (hard tape landing zone, the same no-lower-tapes design, and the blue tips on each of the tapes). Every one of them is just a clone of the next one but with a different print. If you've twsted one brand, you've tested them all.
  22. Slomo

    Hi!

    Apologies it took me a while to see this. As I mentioned, I grew up as a diaper lover. I fought this part of who I am all while growing up and thinking I was the only one, that it was immoral, disgusting, yada yada yada. This, in part, led me to join the USMC. In hopes it would help me get rid of my compulsion for diapers (which we all know never works as it's ingrained). While in the Marines, I was involved in a really bad car wreck. Which is how I became urge incontinent. And I became mobility impared at the same time. So at first my doctor and I thought it was the mobility limiting my ability to get to the bathroom on time. Which was 1-3 minutes and it started hurting. 3-5 minutes and it was painful. Any longer and I'd be doubled over in so much pain I'd choose to pee myself just to make it stop huring. I should have known better than tocthink ot was just my mobility, but actual urges too. Regardless, my doctor was the one who suggested temporary "just in case" diapers, so I went along with it. At least until my legs healed. All the while I secretely thought I had the perfect excuse to start wearing diapers again. But the real problem was I "could" hold it during an urge. It was painful for sure, but I had to choose to use my diaper. Yet I wanted to stop wearing them for good. So in my mind, I though I was making the excuse to choose wearing and using diapers. And that my urges were all just innmy head. That went on for about 4 years. Until one day it just hit me. I had a legitimate physical need for wearing diapers. I also had a compulsive yearing to want to wear them too. So why the heck was I fighing against what I needed AND wanted. I've embraced diapers ever since.
  23. Well this is what I have. I didn't look for the lowest price for these. So you might find them cheaper, nor is any sale or discount applied. So shop around. I received two diapers from Wellness; one blue, one white, but nothing to indicate exactly what they are. The mass is dry in grams, total mass. The NorthShore Supreme is their oldest design and I believe uses a thicker, this heavier backing, which is why it is heavier. I believe that the BetterDry is also a bit heavier in the backing Sadly from what I remember, the Molicare, Abena, and Tranquility diapers haven't changed for years, if not decades. For the most part you get what you pay for. A few are overpriced, but a couple are better than the cost would indicate. The Why Worry sold on Amazon seems surprisingly good. The BeDry and BetterDry would be worth trying too. And yes the XXL Goodnite is heavier than the adult Attends pullup.
  24. @SlomoWhat I feel I'm struggling with the most is the thought that I'm faking it, or that I caused the leaks that I do have as a way to have an excuse to wear diapers.There are lot more conflicting ideas behind the whole thing but that's the gist of what I've been struggling with. I'd be curious to hear your struggle with it and how you were able to move past that. Feel free to PM me if you prefer to keep it private.
  25. Slomo

    Hi!

    Oh. I'm also on SPANDI, also as Slomo there too.
  26. Slomo

    Hi!

    Hi and welcome. Sorry to hear that. I got the same treatment from urologists at 18 after an auto collision. So I know how frustrating it is. I was also abdl before then, so I know how that can mess with us and make us think the physical problem might be a mental excuse. That was almost 30 years ago for me though, so I've had a while to figure things out. Feel free to ask me anything, my "experience" can probably help.
  27. Diaperbutt09

    Hi!

    Hi! I just wanted to introduce myself. I'm Tony, and I'm also on Spandi as Diaperbutt09. I've had and overactive bladder since I was about 6 years old, having a lot of urgency and flare ups that would make me run to the bathroom every few minutes. Doctors kept shrugging it off saying I was too young to be dealing with bladder issues so I gave up trying to fix it. At around 32, I started experiencing leaks, and a few years later decided to talk to my doctor about it just to make sure it was nothing serious. That led to me finally getting a diagnosis of OAB and urge incontinence this year. My incontinence is pretty mild, but I found diapers to be the best way for me to feel control over my bladder, which is something I've never had. I've been wearing diapers 24/7 for over 5 years now and consider myself a DL. How both my bladder issues and DL side fit together has caused a bit of confusion for me overall. I've been looking for online support groups where IC members aren't shamed for also being DL while I learn to accept both my diagnosis and enjoyment for wearing diapers.
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