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Showing content with the highest reputation on 06/22/2023 in all areas

  1. Slomo mentioned the issue with MegaMax's lower tapes making it difficult to get a snug fit around the legs. I fully agree. Partly because of that problem I get better overnight protection from BetterDry than I do from MegaMax, despite the latter having greater absorbency. --John
    1 point
  2. Keep in mind that some diaper shapes just don't work as good for some people. And it's not so easy to just adjust where the tape can land at, or how well angled you can tape it on. For me, there's no way I can adjust the middle tape on a megamax, tykables, or similar type of diaper, to get a half-decent fit. One thing I did try though, is add my own third tape. One low enough that I actually could get a decently snug fit around my legs. And wow, that made all the difference. The megamax I had on could have lasted a full day and then some, and didn't even didn't come close to leaking even when it was saturated all the way up the back side.
    1 point
  3. @Brian Thanks for letting us know you are through this..... I'm sad that you had to advocate for yourself as much as you did. I expected you to have "fun" (not) with the prep, but not to the level it hit you. Best wishes.
    1 point
  4. While I'm normally wearing cloth, on my last vacation I had both NorthShore's MegaMax and Tykables (blue) Camo, plus both companies doubler's. Neither completely work at night for me, however with Tykables doubler added (to either), most nights were good. Because I currently need some protection during the day, but use the toilet during the day, I found the Camo's easier to use than the MegaMax, with the doubler. That took care of the slight issue during the day and then the heavier wetting at night. So, one diaper per day.... If I ever loose more control during the day, I'd have to change how I do things. With the doubler up front, this was overkill for my normal needs, but it kept from hitting leaks at the legs when the front was well used earlier during sleep. Next time I'm on vacation (or preparing / evaluating for) again I need to keep @Slomo's comment about lower tape placement in mind and see if I can make an adjustment in how I use things to get better utilization of the rest of the diaper before it leaks.
    1 point
  5. Here is an update on my colonoscopy: As many of you know I have cerebral palsy and that requires me to use a wheelchair because of mobility and I'm incontinent. One of the things that I knew I had to do was that I had to bring plenty of briefs with me, which we call diapers. I ended up loading my onboard bag that I carry on my wheelchair with 10 of them, and then I loaded my overnight bag with 10 of them. Little did I know however, that the next day would be one of the worst in my life! By this I mean that the prep was something that I was expecting to have to do, and it isn't the fact that I had to mess myself and be changed many times during the day and the night, but I had to take what they call go prep, which is basically four liters of the most ridiculous tasting liquid that you ever thought of in your life, and then once I start that prep, I can't have anything to drink other than the prep liquid. I was told by the nurse that I would have to drink all four liters of this thing, before 7:00 AM in the morning, otherwise the doctor would call off the procedure. Unfortunately what happened was not something that I wasn't expecting: that stuff was horrid, they told me they would mix in some lemon flavoring to the prep mixture, but it didn't taste like lemons, it left a sour milk taste in my mouth for the entire duration, and I threw up about 8 times, almost to the point of projectile vomiting, because I can tell when it gets that bad that the next thing I'm going to release is going to be bio fluids! I was continually coached to keep taking a drink of this liquid and I kept trying to chug it down but it was impossible. I take about I take a small sip every few minutes, but then when I tried to take a large gulp like I would gulp water down, I would choke on it and then I would swallow it and it wouldn't taste very good, and then 15 minutes later I would vomit! This kept on happening every time that I tried to take this stuff, and it would make it very hard. Made it through to the night, but they woke me up at 3 AM, And wanted me to drink more of that, I kept on trying to do that, and then finally I just said I've had enough of this I can't deal with it - So I was instructed to take as much as I could between 5 and 6:00 AM, and then I could stop drinking this prep. The nurse on the floor was telling me that there would be a possibility that I might have to have the colonoscopy canceled if I didn't get enough of the preparation into me to help me clear out my colon. So I go into the prep for the morning, and they get me ready, and they make me comfortable, and of course all night long, in addition to having to evacuate everything in my colon, I was having severe pain in my legs, because I wasn't able to move very well and I couldn't get out of bed of course cause I was in the hospital. so I get into the prep room, and they get vitals from me and they get information from me and they're entering into the system, then what they'll do is they will tell me what's going on. After they do that, they roll me into the prep room and they tell me they're going to sedate me they used fentanyl and Versed in very small amounts to put me under for about 30 minutes, and then they told the me that they were going to remove my diaper, and then they were going to put a camera up there and it didn't even bother me, didn't even feel it. However, 35 minutes later I'm in the recovery suite, and then the doctor comes over to me and says that they need to do it again. They told me that they would send me back upstairs and that they would end up starting me back on the Go Prep probably about three in the afternoon! When I heard that, I literally looked at the doctor and said there's no way in hell you are going to beep give me that beep beep beep again, because not only was it causing me problems because it was making me violently ill it was making me projectile vomit, he was vehemently telling me that I needed to take this prep, because that's what they do for people that are in patients in the hospital. Little did he know however, that I told him that any type of procedure that I do from now on since I am over 50, because of my disability and my mobility constraints would be done in the hospital! I told him that I needed help with the prep and I would never have been able to do it myself otherwise I would have canceled any colonoscopy and I would never have it done nor would I have any other tests completed because no one is available to help me, because my program specifically says that they are not supposed to give me incontinence care! They couldn't change me or anything like that, and I'm on the moderate needs program, which would need to be upgraded so that I would have full care high needs, and if I'm only taking colonoscopies every 10 years that would be ridiculous, and so I told him that there's no way I'm gonna take that again! I was so distraught angry and everything out because I was hungry tired and I hurt, that I was advocating for myself. Then the assistant Alex, told me that they could do another attempt but do the prep in another way! This made me a tad bit more angrier, because the nurse told me that they Would give me miralax plus Gatorade, and basically they would just double or triple up the doses of the Miralax: I told the doctor that I take miralax when I need it for constipation, and I've never ever thrown up taking it, and that was what they said they would do. I basically advocated for myself again and I told the doctor that I would never take that go prep again, he again stood on his laurels and told me that that was the way it was done in the hospital and there was nothing he could do about it! I said well we'll see about that, because my doctor will order a test and he will put into the records that I need to be admitted, and that I need help, because of my incontinence which should be on the records! So they send me upstairs, and the next thing I know they said ok we're gonna do this prep at about 3:30: we'll get the medicine and all that stuff together and we'll have the doctor come see you, and I had the hospitalist in there, and while I was talking to the hospitalist I was telling her about my pain in my legs all night, and the fact that that stuff was disgusting, meaning the prep liquid I had to drink. He told me that it was OK, that nobody really likes it, and that they would take care of me. I had a day nurse named Chris and a night nurse named Geraldine: if it wasn't for Geraldine being so awesome along with Chris being so understanding, I probably would never have been able to get through it. From the time I had gotten there on Sunday afternoon, until about 4:00 o'clock yesterday I had been changed a total of 27 times, gone through 27 mega maxes, and I can tell you from the experience that I would rather do the miralax prep with the Gatorade than any prep that they could ever imagine: they even had me take a special couple of pills every time I would take a Gatorade so that it would help me to evacuate what was left. During the first night when I was doing this, the nurse kept telling me that she was sorry that she had to have me continue to drink it, and I grimaced at it and told that I would try but I couldn't guarantee anything! When doctor Ingram my doctor, found out what was going on, I guess he decided to Chuck on me: doctors now don't have to visit their patients in the hospital anymore, because of the hospitalist, but my doctor took time out of his busy schedule to check on my welfare to make sure I was ok and to make sure that I had everything I needed. I had talked to the hospitalists, and I had talked to him, he gave me the results of my Ultrasound and told me it was a fatty liver, and possibly a lesion on my kidney, and these were pretty common and not to worry about it, and that he would order a cat scan to see what was going on. So I'm upstairs and they tell me that I'm going to be reset for 11:45 the next morning. So that night I start at 3:00 PM or 4:00 PM, and they have me drink four Gatorade. Asked my nurse Chris, if that's all I had to do, and he said yes that was all I needed to do, so I bought the 4 Gatorade's and chose the flavor of the Gatorade's, they went to get them with my debit card and brought it back to me. Then at 3:00 PM they ended up starting me on this prep, in there like doubling or tripling the normal dose of mirror ax that I would take during a day in the morning. Let me tell you within half an hour to an hour and a half, my stomach was rumbling and it started happening really fast, everything I was holding that was stopping the test from the night before was evacuating and it was easy. Wasn't sick, I wasn't irritable, And I was able to drink both of these Gatorade's, and still have electrolytes in my system, because I couldn't eat or drink anything after 7:00 PM the previous evening because of the prep. So I made a note of the east of this transition, and when I went back downstairs next morning to the procedure room I basically told the doctor that the next time I do this I'm going in and I'm going to do it with the MiraLAX And Gatorade, and he's like, we can't do that because if you're inpatient that's what we give you is the goprep: and I looked him in the face and told him that he was full of what I was releasing, and that what I did last night was easy compared to all of the hell in sleepless night and all the pain! I basically had to have the doctor give me an injection of medicine so that I could sleep because my legs were in a lot of pain I was really really tight and I had no way of releasing all of that, but after the scan was complete, I ended up staying in the hospital until about 130 or two o'clock, and then at 230, the orange brought me downstairs to the front entrance and waited for my bus. The local bus transportation brought me back to my house, and then I came back I went to subway afterwards got my sub for dinner after having an awesome lunch of toast a hamburger, broccoli Spears, and two cranberry juices, plus orange Sherbert. I hadn't eaten for almost two days and I was famished! So like everyone says, that prep they use they call go prep is disgusting! They always tell you that you need to advocate for yourself, well let me tell you I did, and I told them that it was easier for me to do the prep the second time than it was the 1st, and if it was up to me all of the nurses that helped me to get through this would have gotten what they call a Daisy Award for their professionalism their charisma their compassion their caring and their loving support, I would never have been able to get through this without them, or without my doctor being tenacious and insisting that this be done! When it comes to my disability and my conditions, I don't care what it costs, but I'm gonna make sure that I am taken care of and I am comfortable! So yeah, my Colonoscopy was clear, it showed diverticulosis as it Says, but everything is clear, everything is clean, and the doctors tell me I shouldn't have to return for 10 more years, by that time I will be 61, and hopefully the medical ways they do colonoscopy prep will have changed significantly so there's no need for me to be so sick tired irritable and in pain that I can't handle it! I never thought that a colonoscopy would be so hard as far as for a person with a disability, but I know for one thing that I would never have been able to do it myself, because I had to be changed at least 27 times. Even last night when I got ready to go to bed, I had to change my diaper and then I had to wipe myself again, because apparently the nurses that changed me the last time before I went out the door might not have gotten me as clean as the nurse that was on duty when they took care of me during the day and the nights before! Brian
    1 point
  6. Not Trest, but I did try Megamax. And was kind of disappointed with them. They leaked on me before they even came close to half full, right at the front of my legs. Not a surprise though, Megamax has their lower tapes shifted up towards the middle of the back wings. Which means I will never be able to get a snug fit around my legs with them. Really with any diaper that uses a tape landing zone, and "no lower tapes". Which Trest is even more extreme with their tape placement, so I have no interest in trying them.
    1 point
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