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Everything posted by Slomo
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I was just talking about this on SPANDI. Based on the ads we get, all types of incontinence can be managed with thin pillups. It's literally at the level of marketing propoganda. I've even come across enough sites that literally state their pulkups are recommended for maximum absorbency and overnight use. An obvious lie of ever there was one. Personally, I can only recommend a few different types of diapers for any type of heavy urine and/or bowell incontinent. Northshore Megamax, Sunkiss Masterpiece, or Betterdry/Crinklz.
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As a disabled veteran, the VA has tried really hard to be our social workers too. They're overwhelmed and under funded for it, but they've been doing a lot better in the last 5-10 years. Now of only we can get them to provide half-decent diapers too.
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I just got my disability rating with the VA increases (from 50 to 90%). Oddly, I was denied the incontinence, which absolutely is in my service record. The problem, the VA lost my service records (national archives confirmed they were sent to the VA). So now I'm going through the appeals process, which can take a while. Or in other words, I'm now trying to let as many people as possible know about my diapers.
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So kinda way off the usual topic here, but has anyone else accepted that diapers are a part of their life? Enough so you've incorporated them into other aspects of your life, interests, or hobbies? For me, I'm a gamer. It turns out this one is gaining popularity of all things. Diapers compliment gaming quite well. No more worrying about pausing at a critical point or "brb" in a party. And to my surprise, I've never gotten any real negative comments about them (other than leaks, which are easily solved with better products like not-depends). And may have converted a number of non-incontinents for those more serious sessions. I'm also a furry. Yeah, yeah, go ahead and show us how misinformed some of you are, and how much misunderstood furries are- or better yet please don't jump to more misjudgements. Anyways, I've incorporated wearing a diaper as an incontinent adult fur. Adding the diaper to my art commissions and even added a "diaper" to my fursuit. It turns out that diaper shaming exists among other furries, and there's even a sub sect of babyfurs, that are even more widely misunderstood. But that's all my point for embracing this aspect of who and what I am. If nobody ever brings it to light and stands up to correct those misjudgements, incontinence and diapers will continue to be shamed.
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I can imagine they would be so concerned about the shells, the diapers didn't even register as a blip on their radar. Hmm, maybe not a good idea. But if you're concerned about getting through with your diapers, just give them something else to focus in even more. Ps. Sorry to hear about you dad. Hope you're doing ok.
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I've noticed the shape/cut of the legs contributed the most towards fit. A "regular" in-between size would, in theory, open up a product line for many more people. I wonder why it didn't catch on.
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Who else has found themselves to be in between sizes due to a change in your weight? And did you ever find a way to better adjust their fit, or did you have to find a different brand? I've used Large Betterdry/Crinklz for years now, but lost enough weight that I can't get as good of a fit any more. The tapes don't overlap at all, but they do extend just past the elastic at the legs. And that has led to leaks at least 1 or 2 times a week. Of course I've tried their Mediums too. While I am well within the recommended sizing, I find they do not extend up past my hips/belt line (leading to leaks over the top while laying down). And even when tapped loosely, the cut of the legs make ot fit tight enough to start cutting into my skin. Out of luck, I did just attend a convention where I had the chance to test out multiple other diaper brands. Most of the ones which use a tape landing zone still don't work for me (@Northshore, please make a Megamax version with 6 tapes). But 1 cloth like disposable from Potty Teaining Dropouts just might work. More testing is required though.
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I do believe I need to get a non-metallic belt for my pants. I've lost 60+ pounds in the past year, so as you may guess, my pants are all loose. And while going through TSA for a retun flight, of course I had to remove the belt. My pants managed to stay up for the scope, but without fail my mostly dry diaper got me flagged for a pat down. And as the agent was patting me down that's all it took. I felt the pants slipping and grabbed them real quick, but I'm sure anyone with a quick eye probably got an impromptu peek show. Thankfully nothing was said, and I got quickly waved through after that.
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Go back to your VA PCM, and let them know Tranquility isn't absorbent enough and you need something better. They may insist you try several other different brands first, but eventually you should be able to get a drop shipment set up. Then you'll be able to get something like Betterdry, Northshore Megamax, or whatever your favorite brand is (within reason of course).
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Had a flight the other day. TSA got exremely handsy afer stepping through the nudo-scope. Interestingly it only flagged my diaper area in yellow, which i did let them know i was diapered. And in spite of me having a booster and being slightly wet. Actually, They were more concerned with my artificial knee setting off the metal detector wand. Had a supervisor called over, and showed them my brace and scar (which is still red since I'm only 8 weeks past the surgery). Did NOT get pulled into a room though, so all was good.
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Interesting. I'm in PT right now for a complete knee replacement- revision. My 7th knee surgery overall. And that's just the knees.
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Colorado puts bathroom on sideline for Deion Sanders after bladder removal
Slomo replied to Iken's topic in General Topics
Can you imagine having to use Depends? Uuugh, those things are horrible. And as it's been said, the only thing dependable about them is they will leak. We need to normalize the realization there's better diapers out there. Betterdry, Megamax, and Northshore just to name a few.- 1 reply
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They 'would' be good for showing off my Crinklz at home, but I don't know. The Gary activewear and Northshore trifecta PUL pants are still my favorite.
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As some may know, I had a recent knee replacement surgery. Yesterday I saw a home health aid, and went through a bunch of intake questions. Among them was how I was dealing with being in bed so much, while also managing being diapered. At first I wasn't able to follow her concern, and said I was just fine. It turns out the aid thought I would be having all kinds of rash and leak problems, and didn't believe I really was fine. After some failed explaining I ended up having to show her I really don't have rash problems, which included showing her the diapers I use. (Betterdry/Crinklz). Which then led to my having to fully explain the benefits of using capable diapers. Needless to say she was impressed and ended up taking a few notes and pointers from me. Apparently, a LOT of her incontinent patients deal with all of the classic and cliché problems we all dread of having to experience. So hopefully now a bunch more people in my area will start getting better care. Has anyone else had similar experiences? What happened, and what came of it?
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An interesting show to say the least. Very interesting a lot of their pullups are designed as incognito outer wear too. https://m.youtube.com/watch?v=Ye3dtN1NQ1k
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I just talked to the floor manager/advocate. Apparently their hospital network, Ascention, has a new policy for incontinent patients. They have implemented a "minimal layers" approach. Which favors having absolutely nothing against the skin, and letting an absorbent bed mat absorb the urine. Another option they have is to use a condom catheter. Though as most of us know, they are not reliable and come with enough problems of their own. I showed my diaper to her (Betterdry), and explained the necessity of a non-absorbent acquisition layer, Thicker padding that can wick urine away, and SAP that locks wetness away. I also explained the cost and time savings with using better diapers. And lastly asked her pass it along to the higher ups and to at least push for a trial run to better test them on other patients. Hopefully that will be the start of better patient care, but in the mean time everyone will need to bring their own diapers.
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It seems like my surgery went about as expected. I'm already in a room, trying to manage the pain. And go figure, I'm on a "no diapers" floor. The nurse wanted to do just chux pads but I told her no way in heck that is happening. I'm so glad I brought my own diapers and insisted I will be using them. I'll need to talk to a patient advocate about the no diapers policy too. That's borderline discrimination against my medical disability. Not to mention incredibly undignified.
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Resurrecting my old thread. Almost 2 years and I'm now headed for another hospital stay. Oddly, for the same right knee joint replacement (the old one needs a revision due to failed ligaments). Being urinary incontinent I'll be in a diaper the entire time. I already know they won't have half-decent diapers to provide for me, so I'm bringing my own Betterdry diapers with me.
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Bummer. Yeah, that's been my experience too. I can get them, but they're all so cheap I'd rather buy my own. I'm still hoping someone out there has managed to get half-decent diapers from the east coast VA. Anyone?
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Awesome, and what brand were you able to get? Something at least like Molicare or Seni? And dare I hope it's Megamax or Betterdry?
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Just to confirm, you're on the east coast correct? And you are talking about having better diaper than the useless crap, correct? I do know the west coast va has a different contract/supplier, which allows for special or drop orders. No such luck on the east coast, where I can get diapers, but they're all useless.
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Just bumping this thread as I'm still hoping someone out there has a tip or trick to get decent diapers through the east coast VA. Heck, I'd be willing to hold my breath till I get them- if I thought it would work.
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Sudocreme is mostly zinc, lanolin and benzoyl alcohol. Which is good for absorbing into the skin to heal damage. It looks like the midline is predominantly Silicone and other extracts. Which actually makes it an ointment that is good for forming a protective barrier, which protects from additional damage. Using any cream first, followed by an ointment, is a proven way to heal rashes extremely well.
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I've got to admit, this isn't overly expensive, and is the first one I've seen that differentiates wetness level too. Interesting they don't tell you how much the single-use strips cost though.
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There is 1 or 2 of them, but from what I recall they are fairly expensive, must be paired with a smartphone via an app, and are no good for indicating how wet you are (only if you are or not). Which means they aren't any good for telling you when you should change either. They're really intended for institutions with the mentally disabled or physically incapacitated. I personally wouldn't bother with them if I were you. I find a quick and discrete pinch to the seat of your diaper is a good way to tell how wet you are and how long before you'll need to change. It's just a matter of making it a habit, which would be hindered if you're also using a sensor. If your real worry is leaks then you'll be better off using a decent diaper (never ever use anything store bought unless you have minor or occasion stress leaks). I personally recommend Betterdry (or Crinklz of you want fun prints), which is cheaper than Depends on a per-day basis, and way more reliable/comfortable. Everyone is different though, so expect you'll need to test out a few different brands before you'll find the right one. And with any diaper, pair it with a Gary Activewear PUL pant. They are real savers for discretness and containing leaks while helping you to notice them right away. Lastly, make sure to read up on the other threads here. They are packed with excellent tips, tricks, and lessons learned.

