-
Posts
306 -
Joined
-
Last visited
-
Days Won
97
Everything posted by Slomo
-
tape and hook and loop diapers(velcro) ease of use
Slomo replied to sjaeger172004's topic in General Chat
It depends on the brand really. Some types of plastic diaper have an extra tough tape landing zone that allow you to unpeal and restick the tapes many times. Other types have what's called second chance tapes. It's a double layered tape, with the first layer that will stay in place really well. But with the second layer that can be unpealed and resticked a second time. The first type is great for readjusting the tapes, but due to a limited landing zone the lower tapes are forced up higher on the back wings, at a middle area. I call this a "no lower tapes" design. Which unfortunately for me doesn't fit my body shape well and always results in premature leaking around the legs. Then there's the second change tape design. Though as mentioned, it doesn't really allow for readjusting the tapes as much. For this, it's important to pay attention how well the diaper ends up fitting. If it's good then try to memorize where the tapes ended up at. Use distance to the edges, the padding underneath, or printed designs to help with that. So the next time you put another diaper on, put the tapes in that exact same spot, and you'll get a good fit every time without having to worry about the tapes. And don't forget that each manufacturer and brand of diaper is made differently. So each diaper will fit differently too. If one type of design doesn't work for you, try a different brand of a similar design. That's why I've said this in the other threads. We can only tell you our experiences and give you recommendations. But there really isn't a one size fits all perfect diaper out there. You really do need to sample different brands and designs in order to find a diaper that will work best for its cost.- 1 reply
-
- 1
-
-
Saw this on another site, and though I'd ask it here too. For those who wear a diaper 24/7, how many of you "air out". That is, to purposely not wear a diaper for a short period so your skin can be exposed to the air and dry out? And if you do, how do you go about it. I've found that doing this goes a long way in preventing rashes, as well as rapidly healing any current rashes. I even found a cheat short cut for it. After I take a shower, I lie down on my bed with my ceiling fan on high. I always have a washable bed pad under me, but I also fold a baby diaper over the tip of my penis. They're cheap enough, and work great. Which catches my inevitable leaks, and the pad gives me a backup in case the baby diaper fails. But the real cheat comes from the ceiling fan. With it creating a strong breeze my skin will be completely dried out in just 5 minutes. Because really, who has an extra hour each day to just lie around in bed, or sit on the toilet.
-
Questions regarding myself about the ABDL fetish crowd
Slomo replied to sjaeger172004's topic in General Chat
Don't worry about ADISC. Others will tell you some of the admins there like to impose an authoritarian ideology onto others, no matter how much they may be wrong. And yeah, they see any form of embracing or wanting acutal incontinence as a type of self harm. But like you said, nothing is quite so black and white. I personally feel that when life gives you lemons, make lemonade. And when it dumps oil on you then covers you with flour, I say make cookies. That is, when life forces incontinence onto you, turn it into a positive and embrace the few parts where diapers can actually be enjoyable. So congrats on embracing the DL side of things, even if it's only a small percentage. As I'm sure you can attest, where you're at mentally right now is far better than where you were at when you originally became incontinent. So YES it is more than ok to like cute things on the diapers you need. And YES your specialist is also right, even those who only wear regular underwear don't have to only wear boring white. So no matter the level of your physical disabilities or mental diagnoses you have every right to be you and wear what you want. (Within normal public decency laws of course). Ps. Me personally, with my incontinence I truly do need a diaper like Betterdry (which fits my body shape better than most other types of diapers). Yet I prefer Crinklz as I've embraced my AB/DL side too. (Which by the way, Crinklz is the exact same diaper as Betterdry but with cute babyfur prints added). There's nothing wrong with that, especially since I don't go walking around town with my diaper exposed. And for the rare occasion when a medical professional does happen to see my diaper, I get far more compliments than I do complaints. -
Questions regarding myself about the ABDL fetish crowd
Slomo replied to sjaeger172004's topic in General Chat
Ok, sorry that last post was long. Now for explaining ab/dl and how incontinence and fetishes play into it. Which sorry again, is also long. First, yes there is a fetish aspect to diapers. Not surprising really, since diapers do cover that part of our bodies. And like the rule says, if it exists there's porn of it. Fetishes are all based on sexuality though (per the dictionary definion- look it up if you must). And not all ab/dl is sexual. From past polls on other sites, it looks like roughly 15-20% of the overall abdl community is purely a diaper fetish. The other 80% is a mix of AB, DL and/or other. It's all on a sliding scale though, and whatever anyone identifies as I say it's all good as long as it doesn't become a detriment to them or others. To get a better understanding, first think of gambling or alcoholism. Nobody truly seeks out to become an addict. Yet science has proven these people are genetically predisposed to become one. Me personally, I believe ab/dl is somewhat similar (NOT the same). We/they are pre-disposed to become ab or dl. Most often, there's a trigger event early in life that opens us to diapers, then there's no going back. AB/DLs can try all they want to purge diapers from their life, but for unknown reasons we're always drawn back, and often into a binge. Which only leads to feelings of self hatred and another purge. This binge-purge cycle can go on for decades, and the only way to get past it is acceptance and moderation. I've heard of a select few who were able to abstain for a decade or more, but that diaper abstinence only led to other replacement "addictions", which were way worse than wearing a diaper. In this aspect it is NOT an addiction where abstinence like gambling or alcoholism is possibe and leads to a better lifestyle. But for abdls it's more of an inate compulsion we are literallt forced to live with. Medical study has made leaps towards this understanding in just the last decade alone, but clearly more is needed. And for those who want to actively seek incontinence? Well, think of transgendered people. None of them ever seek out wanting to live as the opposite sex. Yet they are intrinsically drawn to it as a part of who they are. And not being able to live as they truly feel they should be is extremely detrimental to them, sometimes even leading to suicide (so get help if you are). And it's called Body Identity Integration Disorder (BIID). Again though, wanting to be incontinent is NOT the same, but I personally feel it's like a version of BIID-lite. And only by being incontinent have I been in sync with how I feel my body should have been all along. Though in my case it was a "be careful what you wish for, you just might get it the hard way". As for the AB aspect itself. These Adult Babies are people drawn to the feelings of love, joy and caring a baby typically receives. It has absolutely nothing to do with actual babies, but is what we ouselves yearn for. That might be because they missed getting it as a baby or child, to cover up or deal with abuse, or even just as a retreat from a hard adulthood. The reasons go on, and can be varied for every AB. And this aspect can be achieved on our own simply by embracing baby things, or getting into the right "headspace" by coloring, watching TV programs made for babies, and so on. Though having a "mommy" or "daddy" figure also helps, such as a spouse willing to role play with them. And DL is a diaper lover. This is literally someone who truly loves diapers. And yes, people can love innaminate objects or even the idea of that object. And to varying degrees too. From just wanting to experience the touch or feel of a dry diaper for a short while, to the full comfort and use a diaper can provide. 24 hours a day, 7 days a week (24/7). And yes, like with any form of love it can and often does include sexuality along with it. This is also where DL goes further than a diaper fetish alone. So be careful you don't insult a DL by saying they have a diaper fetish. It can be diminutive and insulting. I won't go too deep into other aspects of the overall abdl community, but it also includes; Little boys and Little Girls (regression but not necessarily with diapers or too early of an age range). Caregivers (adults who want to care for others). Sissies (boys who embrace girly aspects). Diaper or baby furs (furries plus adult diapers and/or baby stuff). Genuine incontinence with or without being AB or DL. Transgendered (usually with some aspect involving diapers). And probably a few others I'm forgetting right now (sorry, not intentional). For me personally I'd say I'm medically incontinent, 20% AB and 80% DL, with the DL in me also being (and incidentally needing to be) incontinent. And the AB in me also crossing over into Furries as a baby fur. But heck, no rainbow is ever simple. And neither am I. -
Questions regarding myself about the ABDL fetish crowd
Slomo replied to sjaeger172004's topic in General Chat
You're definitely on the right website for incontinence support. Without getting into ab/dl, let me say your doctor is incorrect. A sphincteroromy, or more lively several repeat sphincterotomy surgeries, will make you incontinent. I should know, I was in nearly the same situation you're in now. And I too was told no doctor would help me, not until I found one that did help me. I had the same L5/S1 injury. Which turns out that's the magic spot for causing incontinence issues. Mine was severe urges incontinence, combined with a neurogenic dyssynergia sphincter. Basically that means I'd get a sudden and painful urge to pee, and when I tried to relax my sphincter so I could go, it would automatically tighten instead. Years or pushing and straining to pee led to a bunch of other problems. So I was catheterized the same as you, and was also cleared by a urologist to let it drain into a diaper since I also had problems with the bags. Unfortunately I developed a urethral sensitivity from many months of constant catheter use, so I had no choice but to seek an alternate solution. The urologist I found to help me wanted to perform a stoma operation. That's basically bypassing the bladder and creating a new pee hole just below the belly button. This stoma needs to always be catheterized, which means needing the same collection bag or diaper. So that's one option for you to look into. Or secondarily, I pushed for a sphincterotomy surgery. There are two methods for this, either one deep lateral cut, or a more shallow but fully radial cut. The lateral cut weakens the muscle, while the radial cut removes a layer of the muscle all the way around. Both have their merits, but you can't do both at the same time. That's because they can only cut so far before bleeding becomes a major problem. For me, my sphincter had been strengthened so tight that it took one lateral sphincterotomy surgery, followed by two radial sphincterotomy surgeries. But wait, there's more. Our urethras actually have two sphincters, an internal one that is not consciously controlled, and an external sphincter that is controlled. The internal is supposed to automatically open as the bladder fills. This normally produces the I've got to go very soon feeling. And the external is what we release to actually go pee. And go figure, for me the internal sphincter was also messed up just as bad. So back I went for three more sphincterotomy surgeries. So, 6 surgeries in about 18 months. Which had also triggered the growth of a stricture. That's where the urethra gets so irritated it grows some scar tissue. And that stricture needed even more surgeries to try and remove it. Long story short, it took 9 more surgeries. The removal of my prostrate, and the removal of 1 inch of my urethra (which incidentally shortened my penis length and nearly killed my sex life). Obviously though, my case was extreme. Most people will experience incontinence issues with just 1 or 2 sphincterotomies. In fact, if you go to dailydiapers.com, you can search for "getting surgery in mexico". Two people had traveled there to get incontinence inducing surgery, and both were successful with just 1 or 2 surgeries. Though they also had to pay a LOT of money to have them done. -
Hook and loop plastic daily daily diapers
Slomo replied to sjaeger172004's topic in Incontinence Products
Oh yeah. Unfortunately I've had more than my share of medical professionals who were dead set against any adult using diapers for any reason, no matter the detrimental reprocussions. If you can, insist on working with some else who won't let their misdirected, out dated, personal feelings dictate the professional work. If you have no choice but to work with them, stand your ground and pitty them for their limited view of the world around them. And seconded. Cranberry is a super food that's clinically proven to fight UTI's and help maintain a health urinary tract. -
Hook and loop plastic daily daily diapers
Slomo replied to sjaeger172004's topic in Incontinence Products
My experience has been that every cloth like disposable diaper will leak well before an all plastic disposable of the same design. And I can guarantee a thick diaper that has done its job, is much less noticable than a thin one or a cloth like diaper which has leaked. Others will probably say this too, but we are much more aware of our diapers than those around us. That "obvious" bulge is easily hidden by wearing black, and even more hidden by wearing one pant size larger than you normally would. Even that really loud crinkle we hear isn't as loud as we think. I really encourage you to keep seeking an all plastic diaper. Though I also recommend adding a diaper cover over which ever diaper you go with, regardless of plastic or cloth like. The PUL type being the best for discretion and for longevity, as they will help you to detect any diaper leaks before they leak past the diaper cover. And with the PUL having an outer nylon cloth cover they will nearly eliminate that diaper crinkle noise too. -
Need help finding a new suitable plastic backed diaper in Australia
Slomo replied to sjaeger172004's topic in General Topics
Sorry but I'm not seeing how this is different from the last question you had. Have you tried any other diapers to see what works best for yourself? -
Yeah, that's lucky and good for you. Most people don't have good insurance, and samples (1 or 2 diapers) are only good to verify if the size will generally fit or not. It's not enough to truly test them out. For that you need different situations and scenarios. Like different hydration levels, varying activity levels, and so on. The idea is to put each diaper type through vigorous situations, and see how well they hold up (or fail). One day when at home purposely try and see how long you can keep wetting a diaper too. And take note where and how badly it leaks. That way you'll know when it normally needs changing, and how far to -not- let it go for. Trying to maximize each diaper usage if folly and a setup for public leaks. So once you've got that, you'll know when a diaper can no longer be trusted to not leak. And you'll know when it's appropriate to change. Also play around with exactly how you place the tapes with each change. Angle them slightly up one time, and down the next. Straight across another, and tapped snug versus tight. All of this can and will effect the reliability and capability of each type of diaper. If you ever work out or go for walks/jogging, make sure to test a diaper at least once there too. But expect some failures, and always have a backup change near by. I keep two spares in my car, since I'm never too far from it anyways. And always wear a PUL diaper cover when testing them. Plastic diaper covers are probably ok too, but they aren't as durable, are more noisy, and are more prone to failures too. If you can, try overnight diapers for during the day too. Just wear baggy or relaxed fit pants. Jeans are ok, and pleated front slacks are better for this. Black is your friend here too, as is wearing pants that are 1 or 2 sizes larger than normal. Combined with a PUL cover and they will hide even the most bulky diapers quite well. Remember, we are more self-conscious a out our diaper than others are. And besides, others are usually so deep into their own lives they will not notice as much as you think they will. And for the small percentage that do suspect, or know, far fewer will say anything at all. Abive all else, the key take away here is to wear whatever diaper works the best for your needs. And that a bulky diaper which has done its job if far less noticable than a thin one which has leaked. And only after you've got the right diaper on should you take into consideration other secondary factors. Things like discretness, others noticing, or even what the diaper looks like on the outside. Confidence in this will be tough at first, but with every day it will get easier.
-
Forget wetness indicators. All they do is tell someone else that you are wet, and not even how much wet for indicating if you need a change or not. Your two best options are figuring out about what time you will normally need to change. Or second, periodically checking your diaper. I find you can pinch the back seat of your diaper. Discretely of course. This will tell you really good if you need a change or not. I've mentioned this already, but only you will really be able to tell which diaper you need. Plastic backed, and a higher ISO rating are good places to start. And I personally recommend Betterdry. But everyone's body is different, and each manufacturer makes differently shaped diapers. So what works good for one person will not work at all for another. Unfortunately, you need to try out each diaper to see what works for you. Buy just one bag of each major type, and test them out for at least a few days. Note the best 2 or 3, then make a request for those types to your Dr or insurance. I know this isn't what you want to hear, but there it is. On the plus side, you'll know of a good backup diaper you can go with. If there are any supply problems (or better yet, sales), you'll already know which one or two to fall back on. Which is much better than panicking because you can't get your normal diaper for some reason (which will eventually happen).
-
Unfortunately no. But you can make a simple argument for it. It really boils down to total numbers of diapers needed per day times the cost of each diaper. Depends could be something like 12 diapers X $0.60 each- or $7.20 per day. Versus my Betterdry, which is 3 diapers X $1.75 each- or $5.25 per day.
-
Been made fully urinary incontinent due to foley issues
Slomo replied to sjaeger172004's topic in General Topics
Trick for what? They help keep your skin cleaner, but won't really do much to stop an infection. If that's your worry then I recommend adding cranberry juice, or taking cranberry pills. Now those help maintaining a health urinary tract. -
Been made fully urinary incontinent due to foley issues
Slomo replied to sjaeger172004's topic in General Topics
Firstly, have you tried a "catheter bag leg sleeve holder"? They work the best for catheter leg bags. They can be slightly tight, but don't slip as much. They worked ok for me, but ultimately not ok enough. So I've been exactly where you are now. Leg bags were a pain, so I asked my Dr about letting my catheter drain into a diaper. He too said yes, but with two major caveats. First you can't be prone to getting UTIs, and if if you do get any signs you have to make a trip to the ER right away. And second, you absolutely must stay well hydrated. Like 3+ liters of fluids per day. That way the catheter is constantly being flushed out which decreases the chance for a UTI. I found pointing my penis up, then gently looping the catheter back down, worked the best. That will put it towards the middle-front area of th3 diaper. As for the type of diaper you're using. A plastic backed 5000ml ISO is about what you'll need. So what you have should be ok as long as it fits your body shape good. Those "no lower tapes" diapers never fit me right though. Either they are snug and leak around the legs way too soon, or they are tight enough to create a seal but are so tight they cut off circulation, are more prone to splitting open, and having tapes tear off from the backing. I personally found Betterdry or Crinklz are the current best out there for me. I know Australia has its own set of supply and cost problems though, so I encourage you to get 1 pack each of whatever different diapers you can. Test each one out for a few days, and see what works best for the price you pay. Then see about making an insurance request for the top two or three you like best. Also consider getting a PUL diaper cover for wearing over your disposable diaper. They really help you to detect a leak before it becomes outwardly noticable, and they reduce the crinkling noise of the diaper. And as a couple last tips from this diaper-guru. Get used to discretely pinching the back seat of your diaper. This tests for how wet it is back there, which can really sneak up on you when using a catheter. And also carry a small squeeze tube of chapstick with you. The diaper will dry out the catheter at the tip of your penis. Which that makes the normal size changes we get to stick and sometimes become painful. A quick trip to the bathroom and you can apply some chapstick to the catheter there. That will stop it from drying out for at least a few hours. -
So as many already know, I'm functionally urinary incontinent (I constantly leak pee due to previous complications and subsequent surgeries). And as some may know, I'm also abdl and a furry, and have embraced my need for diapers. As such, my go-to diaper is Crinklz (the betterdry version with babyfur prints on it). Anyways, I recently developed an abcess on my groin, so it was off to the Dr for some antibiotics. He already knows I'm diapered, though I usually keep a few plain white diapers on hand just for this situation. It tends to make things less awkward. But of course I'm out of stock and only have Crinklz. Oh well, I couldn't put this off. Sure enough, he did need to verify the infection. And of course he needed an attendant there too. So I dropped my pants, and then my PUL diaper cover. He must have thought that was my diaper, because before I could pull it down he bent over and got a good look at my Crinklz. He immediately said "oh", then "sorry". Talk about embarrassing, though it was all my fault. My Dr did stay professional the whole time, but after I got dressed again he asked if he could ask about my diaper. I said yes, and he said started with asking if I'm ok having to use them. I said I actually prefer them, especially since it's much better than the alternative of not being able to pee at all. He then said he never saw one like it and asked what kind it was. I told him about it and Betterdry, and how they actually work really well and last much longer versus Depends and the like. He then asked about the supplier and cost, so I mentioned LL Medical and North Shore and also pointed out they can easily work out to be cheaper than Depends. He seemed genuinely impressed by them, but also just had to add they were "cute" too. Still an otherwise positive reaction, so I'll take it. Ps. It's only been a day but the infection already hurts less. I should be fine within the usual 7-10 days.
-
I can understand the guilt of incontinence adding to ones impact. But don't let reusable cotton fool you. Cotton takes a massive amount of water to grow, and it strips the land of nutrients. Meaning those nutrients need to be mined and trucked in to replace it. Not to mention it also takes tons of processing to turn it into a usable thread. And just as much to turn it into absorbent underwear. And don't forget the added water used to wash it 100 times, not to mention the harsh detergents. Don't get me wrong though, I'm not saying disposable is any better. If anything disposable and reusable are about as equally bad for the environment. Because disposables are taken from the ground as oil, highly processed to make the plastic. Though greatly offset by adding a lot of byproduct wood pulp, which decreases their carbon footprint. And when used, disposables are overwhelming tossed in the trash, which ends up getting buried in a landfill, further sequestered the carbon of both the plastic and of the wood pulp. That's why I recommend forgetting about their impact and just using whatever works best for your situation. Such as disposable being better for concealing and ease of use, versus cloth being less expensive in the long run and better for heavy wetting. And if you still feel bad about it, then increase how much you recycle. Buy more organic foods, and less packaged items. Get a highly fuel efficient vehicle, and even buy into renewable energy production. I've done all of those, and while it's all more expensive, I have no trubble sleeping at night because of my carbon footprint. For the OP, adding to the landfill should NOT be a determining factor. Though expense is quite valid. As long as you're able to spend more upfront for a good quality reusable cloth diaper and cover, they you'll absolutely have a lower expense in the long run. Though with moderate incontinence, threaded armor probably won't be absorbent enough. They are best used to replace pullups for people with minor incontinence. You'll need to look into actual pin on cloth diapers, though with moderate incontinence you can probably get by with fewer or thinner layers. Combined with PolyUrethane Laminate (PUL) pants, and they should work wonders for you. I personally recommend https://adultclothdiaper.com/ as I've always had good dealings with them.
-
Good on them. We actually need more ads like this too. Waaaayyyy too many people are led to believe grocery store and pharmacy bought pullups will work for anything more than the occasional stress incontinence (light dribbles), let alone enuresis (sleep wetting).
-
I was once told similar. It turns out, catheters are only about as long term as botox injections. Meaning they aren't a permanent solution, and one day you may find they aren't much of a solution at all. It also turns out, there are always other solutions. Your urologist is just too lazy, doesn't believe your problems are as bad as they are, or just doesn't care about you. So it's time to find another urologist. At least, that's been my experience. You didn't mention your problem, but I had a neurological blockage (nerves got fried or crossed or something). I went through a dozen urologist, and one of them also said I should just permanantly use catheters. So I did, for about 7 months (with a new catheter every month). Even had me change them out at home. Right up until I developed a super sensitive urethra and the pain got to be too much. Ultimately I found a really good urologist at the Mayo Clinic. He wanted to do a stoma (diversion to a new pee hole), but I convinced him to do a series of sphincterotomies to make me functionally incontinent. That's a story in itself, but needless to say I'm now stable. As for dealing with the catheters. Lubricate it constantly. Preferably with a non water based lube, as water based will be quickly absorbed by the body. Leading to a dry catheter that will pinch and pull on your member every time it changes size. I found old fashioned petroleum jelly worked best. And in a pinch, lip balm did too.
- 1 reply
-
- 1
-
-
I'd recommend first asking yourself, what are diapers to you when it comes to your sexuality. Barely 20% of those on DD and ADISC are there purely for the sexual aspect alone (ie. A fetish or kink). For the vast majority, diapers can be, and are, a part of their sexuality but they also go way beyond just that. Being incontinent myself I can say diapers are not a requirement for my own gratification, but they sure can be a fun part of it. The biggest hurdle in accepting that (and even embracing it) is probably that misplaced stigma general society has place on adults needing or wanting diapers. Maybe your sexologist can help you in that regard, so yeah it probably is worth mentioning- nay, worth having a long talk about your diapers in relation to sex. Support sites and all.
-
TLDR: Don't. But if you do, use caution. This is a good question. I've been there. And yeah, done that too. Even cleared it with my urologist beforehand. The answer is murky though, so if you can avoid mastrubating with a catheter in, then it's best if you just wait. The size of your urethra, and size of the catheter, are what will really determine if anything bad might happen. Say that IF you could accommodate a 20FR catheter, but only have a 12FR in place, then there's room enough to take that sudden influx of ejaculation fluid. But if it's a 20FR/20FR setup then you could potentially stretch or even tear your urethra- leading to needing a catheter for even longer. Also, if someone is thinking of doing it right after any kind of urethral, sphincter or prostrate surgery, just don't. My situation was about 3-4 weeks after a sphincterotomy, and my catheter was small enough, so I went ahead and "took care of it". First though, absolutely make sure your catheter is extremely well lubricated. Push the tip of your penis down to expose as much of the catheter as you can (but don't pull on the catheter itself). Use only water based lube, and make sure the lube gets well down and inside there. When I did ejaculate I did have a feeleling of lots of pressure, but it dissipated quickly. It was almost a complete retro ejaculation at first too. (Where it all goes in the bladder instead of coming out). That in itself isn't a problem though, just a weird sensation. I ended up slowly leaking more fluid out and around the catheter too, so I'd recommend also wearing a pad or diaper for after mastrubating too. And this last part shouldn't have to be said, but I will anyways. If after cumming you feel ANY pain at all, or start leaking or peeing blood. Get yourself to an emergency room asap. Own up to it and be honest about it so they get you checked out properly. It may be embarrassing, but they've seen worse. And any delays can lead to even worse long term problems.
-
Scientists once said the same thing about glasses. They aren't normal, and using them allows the eyes to get worse. And by always straining to see without glasses, you will keep your vision natural. Personally, I prefer to use my glasses. And diapers.
- 1 reply
-
- 1
-
-
- adult diapers
- diapers
-
(and 1 more)
Tagged with:
-
What is the difference between suppositories and fleet emema
Slomo replied to sjaeger172004's topic in General Topics
A suppository loosens stool to help you poop when you're constipated. An enema is for flushing out stool when you can't go or need to be partly emptied out. Enough so you likely won't need to go again for at least a few hours. Neither will work well enough to completely empty you out for a colonoscopy. For that you'll need to take some prep solution. It can be a prescription that tastes absolutely horrible, or a massive dose of mirlax. I've had 3 colonoscopies and the mirlax works (and tastes) much better- but that just for me. Either one will need to be paired with a whole lot of water. None of this will address fluid retention or urinary problems though. That completely separate. -
Also. HA, I CALLED IT! OAB really IS dr code for "something is wrong with your bladder but we don't really know what. "Most researchers agree that the main obstacle to finding more effective treatments for overactive bladder syndrome is that the diagnosis is so muddy: Rather than a single disorder, it’s a loose group of symptoms that can be caused by many different conditions...."
-
This is a really good study that was done showing the many links between the bladder and brain, and it goes into detail for how things work versus how they can commonly go wrong. It's a little long, and technical, but worth reading for many here. https://arstechnica.com/science/2024/06/to-pee-or-not-to-pee-that-is-a-question-for-the-bladder-and-the-brain/
-
HELP!!!! Bladder causing compromised Mental disabilties
Slomo replied to sjaeger172004's topic in General Topics
Unfortunately, I've been there. Including the failed botox, having to wait for the sake of waiting, and every possible med (which NEVER worked but often came with bad side effects). Catheters worked great to alleviate my pain, but they were also uncomfortable at best, and come with their own set of problems. Uuuuugh. The only solution I found was to fire that urologist. If they aren't willing to listen to you, or worse are failing to do good like they swore, then it's time to move on to someone else. Go to your GP and ask for a new referral. I know, it sucks because it will take 1-3 months just to get a new urologist up to speed. But it really IS faster and easier to start all over. Though when you do talk to a new urologist be sure to underpin everything you've been through. It should also help to put together a short, 1 page max, chronicle or journal for them. Include one line each for rough dates? what you've tried, and the good-bad effects it produced. I also found it really helps when you stress your current quality of life (or lack), and everything that has helped up to this point (even the small stuff like timed peeing or dehydration before bed). You didn't say this, but are you managing your issues with diapers? And are you already wearing them 24/7? I found this is REALLY important to urologists if you're already thinking that total functional urinary incontinence as the best solution. If you are, then also make sure to stress a sphincterotomy will NOT make you incontinent or dependent on diapers- you already are. But, the surgery WILL improve your quality of life. Oh, and I was told stents have seriously fallen out of favor. Apparently long term studies showed a very high likelihood any stent will cause strictures. Of which, just block you off again. So in 10-15 years it will require being removed, AND you'll have to deal with a complete blockage. The alternative is sphincterotomy surgeries. They are a pain, AND I guarantee 1 surgery will NOT be enough to make you incontinent. 3 maybe, 6 if they have to do both your internal and external sphincters. I asked for a sphincter-ectomy (where they go in through your perineum and cut the muscle out in its entirity), but was denied that and had to go with the sphincterotomy (where they make a radial cut on the inside of the urethral sphincter) (NOT a lateral incision, those aren't "aggressive" enough and don't work). Ultimately though, my 6 surgeries caused a really bad stricture, which ended up being 15 surgeries, including a turp, full prostrate-ectomy, and removing another half-inch of my urethra. Yeah, no joke there. Like seriously? 1 sphincter-ectomy the first time would have been soooo much more efeective, favorable and better. But al least now I'm stable. Hope this helps you. Reply here if you need more. -
void trial and hopefully Indwelling cath removal
Slomo replied to sjaeger172004's topic in General Topics
I've had this done before. They fill your bladder with water then immediately remove the catheter. The test is to see if you can empty your bladder right away, or not. It's done as part of a urodynamics test, or after you've had any retention problems or recent urinary surgeries. And yes, it's common to have leakage after a catheter is removed. Things should return to normal fairly quickly- unless there's some other underlying problem or condition. So absolutely make sure you have a spare diaper with you, or better yet just wear a diaper when you go to the test. (You can always remove one tape to take off the diaper for the test itself).