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Showing content with the highest reputation on 07/15/2023 in all areas

  1. Slomo, you are fortunate to have found a urologist who cares and has some interest in incontinence management. And good for you for educating your doctor about management. My urologist is a good practitioner, but has zero interest in managing, vice curing, incontinence. In contrast, my SCI rehab doc has shown such a great interest in the management aspects that I regularly have a "show and tell" session with her at the end of my appointment. When I showed her a Megamax she asked whether she could keep it to show the other docs. We similarly discuss enema equipment, etc. As a SCI rehab specialist, she is into the practical side of diapers, laxatives, enemas (now commonly called "irrigation"), enema gear, etc. (more than any other physician I have met). Bowel management is a critical health issue for quads, paras, and many others with severe spinal trauma. --John
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  2. I just had an interesting conversation with a new urologist, so thought I'd share. For those who don't know, I previously had a severe urinary blockage (neurogenic dyssynergia), coupled with sever urge incontinence. And yes, it was painful and the complications from it were even a little deadly. A whopping 16 surgeries later and now I'm functionally incontinent, with dripping all the time. Except recently I've sometimes been retaining urine in my bladder. Given my history I figured it would be best to look into why that's happening. So my pcm referred me to a new urologist. I'm a disabled veteran, and get my primary care at a Navy base hospital, and my urologist referral also ended up being on base too. And he is an active duty Captain. So I started him off with a brief history, where I should be with my functional incontinence, and what's been going on. And as expected he ordered a cystoscopy for a later date so we can figure out what's changed. But then he starts asking me how I've been dealing with all my problems, sex life, and managing my incontinence! Like, no other specialist has EVER cared enough to even ask this stuff.... On the topic of managing my incontinence we ended up talking about how difficult it was for me when I first started wearing depends 24/7 (In the 90's). And how bad they were with leaks. How even now the only thing dependable with Depends is they absolutely will leak. But I've since found much, much better online that is also cheaper. Intreagued he asked me what I use now, and I told him Betterdry (just to keep it simple, even though I actually use Crinklz). That yes they cost 3x as much, but they also last 6x as long. They don't leak, have better acquisition and therefore feel dryer for longer, need changing much less often, and therefore cost less on a cost-per-day basis. And he was really happy to hear all that. I just wish I also told him about LLMedical, which sells them with a military/veterans discount. Lol, or maybe this website too.
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