Hi all

Monday morning I will have a void trial as had an indwelling cath in since 26th March what will I be walking into as well as hope to have the Cath removed finally?

What do I expect after removal I have heard about uncontrollable bladder leakage (which is no big deal to me as always well padded) just wondering for how long?

Many thanks

1 hour ago, Slomo said:

 

And without getting into too much detail. I personally find it quite pleasurable to add some petroleum jelly to the inside front of a wet diaper. Then lay down on top of a pillow of favorite stuffed animal, and well... have some hands free fun. This method works especially well for me as I had my prostrate removed at age 42, and ever since then I haven't been able to get hard enough for sex with my wife. But neither my feeling down there or inate sex drive have been reduced, so being able to reach a climaxe is otherwise more difficult. Relying on diapers this way is more than a coping

Thank you

I feel a bit better now knowing I'm not the only one or a freak.

Now I have to explore stuff not sure how to explore practically with "someone professional" as I am Autistic and learn both visual and practically 😢 which makes learning quite difficult

 

Hi all

Well another month atleast with this Foley/Indwelling Catheter in well I need something supportive to strap it better and more comfy as had an issue where it tugged a little and well blood in bag.

I use a 500ml day bag and the supplied straps as so uncomfortable and irritates me (I gave sensory issues ADHD and AUTISM) and find I have to always readjust it as well as the velcro is so annoying.

As well as I am also looking for adaptive pants/shorts that open at the side (unnoticeable) I walk mostly and sometimes in a wheelchair and need the day bag upper thigh as I have issues bending (spinal issues) but hopefully the government will supply me with a portable Mobility Scooter (already did trials with OT).

Would prefer from Amazon as I live in Australia

Measurements are

117cm hips
104cm waist
97cm from waist to feet (Pants)
42cm from waist down (shorts)

Many thanks
 

Hi

I am wondering where to buy Bambino Ultra stretch internationally as may be cheaper than buying in Australia. Bambino.com does not ship here

Many thanks

6 hours ago, Slomo said:

I've had it done, twice. My issue was severe urge incontinence with a neurogenic dyssynergia sphincter. Basically, I'd get a painful urge to go, but when I tried to relax my sphincter to go it would clamp down shut instead. I had to strain and push to pee, which was causing other problems too.

I first had the botox injected into my bladder wall lining to try and calm the urges. It did work, except the botox also deadened my sphincter muscles, in their default clamped down mode, which made it even more difficult for me to pee. I ended up with an indwelling catheter for 3 months while it wore off.

The second time I had a botox injection was into my sphincter muscles, with the hope they would be more open and less active. That completely failed, and again I was left unable to pee at all. And again I was catheterized for another 3 months. I refused any more attempts with botox, and pursued surgery (which subsequently worked to blow away my sphincter muscles and let me dribble pee all the time).

Don't let my story dissuade you though, I have heard of others with success stories when trying botox.

This is what I am fearing re Botox my urologist I think is extremely arrogant and says no chances of that. but I am prepared if that happens well I will ask for surgery you had as I am sick physically and mentally of my issues

Been diagnosed with under active bladder and urologist next month is giving me Botox at the prostate and urethral sphincter.

Has anyone had this done

as it is I tend to store 800 -1200mls before I feel it if I don’t have overactive symptoms that day.

my private continence nurse and public health urologist has divided me on different treatment plans as urologist refuses to communicate with continence nurse

5 hours ago, Slomo said:

The valve I had was like a short piece of tubing with a flapper in it. The flapper could only open one way, so urine could pass out but nothing could go in.

And I mastrubated normally, with the catheter still in place. Just make sure the catheter is well lubed first.

Thank you

7 hours ago, Slomo said:

I once had a urologist suggest the same thing to me. I went 7 months straight with an indwelling (folley) catheter. With my doctors approval I used a one-way valve on it, and let it drain into a diaper. The catheter was changed out once a month.

It did prove to give me much needed relief. Though I quickly found you need to apply a non-water based lubricant to the catheter every day. Right at the tip of the penis where we're prone to get size changes. The best one was lidocaine "ointment" (not the gel), though plain petroleum jelly also works good when in a pinch.

Ultimately, after 7 months I developed a urethral sensitivity, just from the constant rubbing and having something in my urethra. So I had to quit using them and find an alternative. For me, that was 15 surgeries over 3 years. All intended to remove my internal and external sphincters.  That also ended up removing strictures and my entire prostrate. But I'm finally stable and leak urine all the time instead of having painful retention.

I never once had a uti, but came close a few times. Constantly drinking cranberry juice likely helped a bunch. And it goes good with vodka too. You can have sex with a catheter in place, but you absolutely must use a condom to keep it clean. Honestly it wasn't as pleasant, so I mostly just mastrubated. In either case you'll most likely have a retrograde ejaculated, or you'll slowly leak past the catheter. When using a leg bag with also using a leg "sock" was ok on comfort, but in the long run I found just using a diaper was the most comfortable.

Let me know if you have any questions, I'll reply here so others can benefit too.

Well I dont have sex but masterbate how do u do that with an indwelling as wont be able to take it out myself

5 hours ago, Slomo said:

I once had a urologist suggest the same thing to me. I went 7 months straight with an indwelling (folley) catheter. With my doctors approval I used a one-way valve on it, and let it drain into a diaper. The catheter was changed out once a month.

It did prove to give me much needed relief. Though I quickly found you need to apply a non-water based lubricant to the catheter every day. Right at the tip of the penis where we're prone to get size changes. The best one was lidocaine "ointment" (not the gel), though plain petroleum jelly also works good when in a pinch.

Ultimately, after 7 months I developed a urethral sensitivity, just from the constant rubbing and having something in my urethra. So I had to quit using them and find an alternative. For me, that was 15 surgeries over 3 years. All intended to remove my internal and external sphincters.  That also ended up removing strictures and my entire prostrate. But I'm finally stable and leak urine all the time instead of having painful retention.

I never once had a uti, but came close a few times. Constantly drinking cranberry juice likely helped a bunch. And it goes good with vodka too. You can have sex with a catheter in place, but you absolutely must use a condom to keep it clean. Honestly it wasn't as pleasant, so I mostly just mastrubated. In either case you'll most likely have a retrograde ejaculated, or you'll slowly leak past the catheter. When using a leg bag with also using a leg "sock" was ok on comfort, but in the long run I found just using a diaper was the most comfortable.

Let me know if you have any questions, I'll reply here so others can benefit too.

What are one way valves are they the flip and flow ones?

many thanks

15 hours ago, Slomo said:

I've been almost exactly where you are now, and I've been through it too (though I can get around with a cane, not a wheelchair). I had severe urges with an inability to pee when I needed to, so I had to push and strain really hard just to get a light stream. That also cause bowell issues, on top of my already IBS-D. As well as other bad issues.

For keeping in a suppository, just about any anal plug will work. Amazon sells tons of them, as will any local sex shop near you. Start off with a small one, maybe like 1-1/4" max diameter. Use plenty of sex lube or (my preference) petroleum jelly. Insert it slowly, if it starts hurting even a little then stop and rest for a minute before continuing to insert it. If it does hurt, it's probably too big. Don't force it, and go get a smaller one.

As for catheters and diapers. I asked my urologist at the Mayo Clinic that same question. His answer was yes, but with some big caveats. An indwelling catheter can be allowed to drain into a diaper.  However, you absolutely MUST stay well hydrated. Like 3 liters of water spread out over the entire day. This way the catheter will be constantly flushed out. Also, you absolutely must NOT be prone to UTIs. And at the first, smallest, sign of an infection you must go back to a collection bag.

If you have an old collection bag, it is also a good idea to cut out the inlet valve on it. It's a one-way valve that you can still use with the catheter in your diaper. And it will help ensure you don't get a UTI. And lastly, add on cranberry juice (not the juice mixed with apple, you have to look at the ingredients list). Either that, or take a cranberry pill every day.

As for you bladder sensory problem. Is painful at all, or does it affect you quality of life any? Mine did on both, so ultimately I was able to convince my urologist that making me functionally incontinent would solve both of my problems. It took WAY too many repeat surgeries, but eventually the sphincterotomies I had did work. I now drip pee all the time without any pain or discomfort. It's an extreme solution, and getting a urologists on board with it will not be easy.  Two key points to make are that one, the surgery will not make you incontinent or diaper dependent as you already are. It will only change the type of incontinence you have to deal with. And two, it will improve your quality of life. It will make it easier and less disruptive/painful, thereby enabling you to do more and get on with your life.

Yes my Bladder does get painful and well as really affects me psychologically and Physically (I drink pepsi max sodastream) due to cola and soft drink doesnt affect the bladder as much as water does hence it has helped fucked my teeth, causing light headedness, sick etc due to dehydration.

I was just wanting to trial the indwelling Cath into diaper with a high dosage cranberry pill from Iherb and issues I will stop and I have support workers to help me with learning how to redrink, and hygeine etc

33 minutes ago, sjaeger172004 said:

Genuine Continence issue question to induce leakage as well as butt plug

partially in a wheelchair.

I have Bladder retention and leakage and over-sensory issues with the bladder (I also have autism) as well as issues with slight leakage and severe constipation of the bowels.

Public Urologist has no confidence in how to treat me he expressed to me and my Support worker (who is also a nurse) I see my Continence Nurse early next month for a follow-up

I am wondering
Are there any reusable anal plugs to keep prescribed suppositories in for the required 30mins due to bowel issues due to spinal signal issues?

Also looking at an Indwelling catheter to drain into diapers like a temporary stent (to stop the over-sensory issues and retention) I do not want a bag as I am mostly mobile as well as a bag gets twisted as well as pee can escape around the catheter as well as I can't self-cath due to disabilities incl Essential tremors in my hand which are too extreme.

A previous Public Urologist stated years ago they can't do anything as they could make the leakage or retention worse hence the idea of induced incontinence as well as making myself physically and psychologically sick with dehydration as water aggravates the overstimulation of my bladder hence I drink mostly Pepsi max or coke zero with is damaging me teeth etc

Has anyone done this if so any recommendations

TIA

As it is these issues are really affecting me mentally to the point of thoughts of Self Harm (don't worry I won't as I have a fur baby that keeps me on my toes and hasn't had a depressive episode in years) as really who would want to really piss themselves but I think would be the healthier option ( a means to an end )overall if it allows me to drink more fluids including water (replacing caffeine etc) I have also mentioned this to my psychologist and psychiatrist as I also have Bipolar and Autism so it affects both and also mentioned it to Urologist (in writing but ignored my concerns and symptoms as well as my Continence Nurse has been sympathetic with me and I have emailed her.