
sjaeger172004
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Everything posted by sjaeger172004
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Hi all I am wondering if Medline® Remedy Clinical Silicone Cream and Sudocreme are identical products as my ex continence nurse put both down in my continence report? I am looking for peoples personal input and will ask my Urology nurse and Continence Nurse (when I find a new continence nurse) Thank you
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Hi all Any one know of any Diaper sensors on the market that can be used on any diaper? As this seems interesting as I am not sure when to change due to being new (Since November) 100% medical induced Urinary Incontinent Thanks
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Hi. I am fully urinary incontinent and sometimes bowel issues due to severe constipation so have to wear 24/7 and wear rears mega line (to save costs and changes during day. I tend to have this issue from time to time on my outer right thigh under side of diaper Any issues why and how to treat? (I will ask my urinary clinic nurse next time she changes my IDC) but wanted people who wear opinion I am in Australia barrier wipes and crème doesn’t work Thank you
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Medical / Diaper Bag recommendations
sjaeger172004 replied to sjaeger172004's topic in General Topics
I sit to change I do occassionally suffer with bowels I am planing to leave it in support workers car if we going shopping etc but long days eg public transport or a large distance from car eg expos etc is when I will take bag with me Thanks -
Well My Nurse Practitioner suggested I get a backpack big enough for my Diaper bag as I had to have a new assessment done I needed to sort out all the plastic-backed samples as Australia is no longer getting Bambino as well as I had to resort to using an added overnight booster (Distributer stopped with Bambino due to quality). Also, do you have any suggestions for a portable change mat? I need to hold a portable change mat as I can not twist and turn to change in a small restroom if no disabled restroom is available (quite often in Australia) as I don't want to either be in agony twisting and turning or sitting on a filthy public toilet. iPad Multiple Mega Mermaids (out of all the samples, this was the best fit, and it had velcro tabs) as I have issues with my hands as well as a wetness indicator Plastic pants Clothes (Shorts and onesie) Wipes Trash bags Portable charger Nintendo Switch Medications Portable Ventolin Spacer Etc Something that can also swing over a Mobility Scooter
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Sorry 2 questions How long did it take people to learn how much volume they leaked over a certain period and circumstances as I am struggling to figure this out. I had a meeting with my RN, who is doing my continence assessment and helping me find the correct products (as I have sourced most, if not all, the appropriate plastic-backed products I could in Australia). I am not sure if I am missing any, as these are what I was able to find. She stated that I will pee in different volumes in different circumstances. Sorry, this is all doing my head in Are there any Samples I am missing as require plastic backed due to allergies(as I have already received these and will be taking them to my appointment sometime in January which I have emailed the list to her I am looking for a good capacity of 1 or 2 changes per day and one change per night (I have Nocturnia and OSA) Rearz Lil Monsters Rearz Mega Critter Rearz Critter Caboose Rearz Mermaid Tails Rearz Safari NRU STR8up Adult Nappy Tykables Overnights Tykables Lil builders DinoRawrZ - XLarge PeekABU - Large TinyTails - Large LittlePawz - Large TREST Elite Briefs Blue Incontrol BeDry Premium Premium NorthShore MEGAMAX Mega Inspire+ Adult Diapers 11000ML Sample Pack - Incontrol BeDry Premium Nights Sample Pack 12000m
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Male masturbation with foley/ indwelling catheter?
sjaeger172004 replied to sjaeger172004's topic in General Topics
How do I add more lubricant inside the penis? Also I have no issues of drying out Sorry if using incorrect terminology as never had any "trauma" issues doing the "deed" before except rubbing skin raw now its internal issues sorry -
I started living with a full-time Indeweller Catheter in April this year as my Urologist trialled Bladder Botox, which caused near retention I (had retention and overflow incontinence since injury when I had to start wearing Pullups then Nappies when things progressed), but the Botox made it worse. Since then, I have been having issues days after I sexually relieve myself (I am a single male), which has left me internally raw for days to the point my Urology nurse has noticed I am raw and commented. I have never learnt much about relieving oneself from anyone, but now it gets painful for days after relief. Do you have any suggestions on where to look for advice (I have no idea)? My urologist specialist has ruled out SPC, and due to my Autism and essential tremors, I can not self-cath, so full-time IDC, open valve (issues with it closed as well as problems with leg bags)draining into nappies as my nerve to the bladder muscle has been damaged my Urologist has stated. Sorry if it's inappropriate not sure where else to ask as I am isolated
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Hi all Well, my distributor in Australia (littlesdownunder/downundercare, I can only guess, some issue from Bambino and shipping to Australia, but I don't know) for Bambino has stopped supplying Bambino diapers (only plastic I have used). He is out of the Ultra stretch, Magnifico, and Bloomz in Large and won't be getting any more. I have narrowed it down to the following samples and am wondering how noticeable they are under clothes as well as capacity (As I need to be thoughtful as paid by the government due to medical incontinence), so I maximise dollar per nappy and prefer less environmental waste as well as fewer diaper changes as well as not having to buy additional boosters. I am only Urinary Incont (fully induced recently as I was only overflow incont due to l4l5s1 nerve damage and now have an open valve Foley leaking into the diaper as well as on high dosage of cranberry) by urologist as I was getting too my UTIs due to retention no UTI since this set up as well as had issues with closed valve and leg bag system urology specialists are closely monitoring me DO NOT DO THIS WITHOUT MEDICAL PERMISSION) Next year I will have to make final decision but have enough supply of bambinos and boosters til March I am 42-44inch ABU DinoRawrZ - XLarge PeekABU - Large TinyTails - Large LittlePawz - Large Crinklz CRINKLZ ASTRONAUT ADULT NAPPY Crinklz Astronaut Adult Nappy littlesdownunder.com.au Incontrol https://littlesdownunder.com.au/shop/incontrol-elitecare-nappy/ Tykable https://littlesdownunder.com.au/sho...ttribute_size=LARGE&attribute_quantity=SAMPLE https://littlesdownunder.com.au/sho...ttribute_size=LARGE&attribute_quantity=SAMPLE NRU https://littlesdownunder.com.au/sho...tribute_quantity=SAMPLE&attribute_colour=BLUE Rearz https://littlesdownunder.com.au/sho...ribute_size=X+LARGE&attribute_quantity=SAMPLE
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Hi all I have only used Bambino Ultra stretch types (which are plastic-backed and hook-and-loop)/Velcro and have never used the tape type before. Unfortunately, Derek from littlesdownunder/downundercare is no longer going to distribute Bambino and has no Ultra stretch large/XL left and won't be getting any more and was the only distributor, so I need to find a new one. How hard are tape-type plastic diapers? I have never used them before, and I most likely have to change the tape type as I have a limited range of plastic-backed as well, and I am medically allergic to cloth-backed according to my documentation from Urology. Many thanks
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Questions regarding myself about the ABDL fetish crowd
sjaeger172004 replied to sjaeger172004's topic in General Chat
My issues is sever retention (til leakage AND/or UTI)to the point I need an ICD Foley to force my bladder to empty and cant sell cath due to physical and other disabilities so I have one openly leaking into diaper under urology supervision with high concentrated daily Cranberry supplement -
Questions regarding myself about the ABDL fetish crowd
sjaeger172004 replied to sjaeger172004's topic in General Chat
I don't enjoy them but medical need. If I woke up tomorrow with full functional bladder I would need retraining (due to anxiety) to stop wearing them if this makes sense. As well as I am mainly stuck with ABDL diapers due to not many suppliers with plan white if any as well. -
Questions regarding myself about the ABDL fetish crowd
sjaeger172004 replied to sjaeger172004's topic in General Chat
Thanks for that Over on ADISC Forums. I posted the same thing under Incontinence and had to answer why I posted in the Incontinence Forum as well as other places accused me of ABDLness (wanting to become incontinent, which has never been the case it was the guilt or confusion of not being 100% urinary incontinent it comes with Autism style of thinking is black or white (psych talk) which has changed the last 10 years as in all areas of my life I starting to see grey) Unfortunately, starting, I considered myself 100% incontinent (rather ABDL) back in 2009 until recently, now 80+% incontinent and the remaining maybe DL (I guess acceptance of my incontinence) as up to just a couple of years ago hated myself and disabilities to the point of depression and until recently until I had the right supports (still working on supports) attempts of s********* which were a yearly in secret since the age of 8 or 9. I wished I could have accepted sooner or been able to embrace the ABDL lifestyle privately but cant as that would have helped I guess the enjoyment etc only part is that I am comfortable with good quality ABDL diapers as long as not too bulky as I now need absorbency. The following was my defensive reply. I don't consider myself to have either an AB or DL fetish. I am wondering if it's ok to like cute things and if and how I come across as AB or DL with my posts, as I have been accused of if this makes sense as I have issues articulating due to my isolation and disabilities. Regarding my Asperger's (DSM 4)/ Autism level 2 (under DSM 5), I am starting to receive help with my sensory issues as well as accept my sensory needs still exceptionally early on as I had to repress everything, growing to the point I would be physically abused if I did anything stimulating and looking like a "retard"(squinting, rocking etc.) by parents as well as still learning no Sensory Profile done yet. I got to the point where I refused to acknowledge any of my disabilities, e.g. physical or mental. Etc as now starting to use my funded mobility aids (spinal issues) as well as requesting help with personal care, showering, etc as I am a huge fall risk as well as quite painful to bend to shower, even to the point I wore Cloth Backed pull-ups for years 2009- 2019 until I was forced to use taped nappies as the continence nurse did a continence report for government 1st one I ever had due to the slippage due to my body shape (my hips or thigh one being bigger than the other so wouldn't stay up) damaging my skin I was so resistant to taped due to stigma of being for babies etc. Then (2019 - 2023) I had another assessment and was told the highest abena cloth backed diaper was also damaging and I reluctenly asked the continence nurse Bambino Ultra stretch (pure white) would be helpful as they were plastic and she agreed to trial samples (without her assistance regarding my reluctance babish I would still be in damaging cloth backed diapers that were sub optimal) then I had to go to the printed style due to supply issues with the only distributer in Australia so now I don't care if printed or pure white but I prefer not the boring pure white (I still get embarrassed) to the point my specialists say well adults wear different colored underwear why cant you. Now I have to find a non Bambino plastic back as the Australian Distributer refuses to order more Bambino and he is reluctant regarding Tykables until he knows what President Trump does with Tarriffs and how that would work out. I have enough Bambinos til March as well as needed day and night Boosters (but might have to change to Night boosters during day as I brought his remaining day stock, -
Hook and loop plastic daily daily diapers
sjaeger172004 replied to sjaeger172004's topic in Incontinence Products
No longer able to get any more Bambinos in Australia, nor maybe Tykables as the Distributer has stopped the Bambino Brand (he got his last 2 cartons of 40 diapers each carton), and he is seeing what President Trump does regarding at least Tykables. -
Hook and loop plastic daily daily diapers
sjaeger172004 replied to sjaeger172004's topic in Incontinence Products
I think she was scared to upset the government as her report states I have issues with plastic backed as well as lack of knowledge on plastic-backed options but the email stated she had a duty of care to me and to the government -
Hook and loop plastic daily daily diapers
sjaeger172004 replied to sjaeger172004's topic in Incontinence Products
Thank you I currently wear Bambino ultra stretch or the designed version with plastic pants and snapped onesie over them. thankfully my urologist has written me a supportive letter stating the need of plastic diapers due to medical allergies hence medically can’t use cloth backed which the government has accepted (not sure if the registered nurse who is doing product list has accepted it though) their only distributor in Australia will be discontinuing all bambino products so have to find a better quality/capacity now as urology has told me to just use them to the diaper capacity or when I have skin irritation with good barrier crème as well as a cranberry supplement against any slight possibility of UTI due to open foley. -
Hi I don't consider myself to be in the fetish crowd, but I have a few concerns. As well as I am not 100% mentally fine due to stress levels as well as feeling very self conscious. I believe each to their own as long as no harm to anyone, not breaking any laws or doing anything inappropriate in public or involving unwilling peoples. 1. Short Background history/reasons for me asking the questions I do, how I do it, and how often I am unsure if I come across as being in that crowd or wanting the incontinence. I don't, but I have social and communication issues that are linked to my Autism type 2 (used to be Asperger under DSM 4), ADHD, Bipolar, Numerous Anxiety disorders and social isolation (no friends, as well as being restricted to my bedroom by an evil stepfather who was abusive (which all specialists believe damaged my spine with all the kicks in the lower back while Im rolled in a ball trying to protect myself (can't get specialists to put that into writing he caused it as no issue until I had chair snapped in 2009 so no spinal scans prior) in every way but thankfully not sexual) as well as moving all the time (5 primary schools (those outside Australia Kindergarten to year 6). I had no Sex Ed even in High School (getting some relationship counselling under disability funding for sex, social and relationship counselling, as I always got kicked out of classes due to behavioural issues (My parents kept Asperger's/Autism to themselves only found out when I got kicked out and disowned due to a psychotic break in 2002 at age 15/16 as no one at all picked up I also had Early onset /childhood bipolar (let's say ADHD prescribed Dex and Antidepressant is not a good combination) as well as abuse from mother after she left evil stepfather. To top it all off, he was never charged for anything, even through Child protection documentation and medical and school reports. Still, he is even now a solicitor/lawyer (even had local cops and family GP state I deserved all the abuse as I had ADHD when police came out. Many apologies for the history lesson. I just felt I needed to explain myself, and it felt good to type it out as I am starting to let things go and get ahead in life (except for physical health disabilities this year). 2. AB I don't get the enjoyment? of being an AB or DL. I only found out when I googled for support information regarding incontinence when I became incontinence (retention issues due to nerve issues in the l2,l3,4, L5-S1 area (I guess I wished I could restart life and be brought up in a loving family and stay in the exact location growing up but have all the same friends and positive people/relationships in my life, but that's about it. I lie. I also like snapped-sleeved onesies under clothes as they hold everything in place, keep me from exposing myself due to plumber's crack)as well as keep my spine warm and conceal my Diapers. Would it be wrong if I liked some cute designs? Not to show it off (OMG, never in public; I would die in shame), I only take my outer clothes off (that is over the onesie) when at home due to comfort when I have my support worker who also helps me with personal care and clothes as I am dependent due to my deteriorating spinal condition. 3. DL DL? I don't get how anyone would choose to become incontinent without medical reasons, the cost, the stigma, the social norm, all the prep and worry of leaks as well as the hassle of carrying supplies, etc. Only after years of self-research in medical journals, refusal of help by professionals and no treatments available to become fully continent I wish I had 0 control and that I would be made medically incontinent (even though I didn't know it was overflow incontinence as my bladder would get overfilled then leak due to the damaged l5-s1 nerve that affects the bladder nerve to empty god knows how many UTI I have had (only the last 2 years I have had a Urologist take my situation seriously that is very progressive as well as one of the top urology Professors at least in Australia take me on through his public health department) even he was highly impressed with all the research I had done even though my terminology I have been incorrect or expressed myself incorrectly we came to the same unfortunate solution foley for life due to no operation will fix the issue. (Yes, he was the one that has been told I have an open Foley leaking into my diaper as my Bladder cannot handle a closed valve for extended periods. Otherwise, it will spasm and push everything around/past and become highly uncomfortable) The catheter bag would always slip no matter what we come up with, as well as diapers (I have bleeding hameroids due to the same nerve injury, and my gastrologist refuses to remove them as I have an endoscopy and colonoscopy which even the hospital couldn't even have me fully prepared for as I went in the night before due to severe Constipation I wasn't fully cleared by the following afternoon after the prep drink and two fleet enemas on the day of the procedure). Is it wrong that I like printed non-girly diapers over plain white? Also, I medically require Plastic back over Cloth back (Documented by the Urology Dept) and cloth-backed options here in Australia. Well best quality is Abena, and they were crap. I am until I learn how to tell wetness indicators to tell when the diaper is at capacity, as I am still learning. During my Indwelling Foley change today, I stated I don't have to change by the clock frequently but how the diaper's capacity is as well as comfort. I can only get a certain amount of Diapers per day funding. I am also very financially conscious (even though it is the government money/Taxpayers' money, I feel wrong and always try to get the best for the buck I can). As this is the environmental side, most if not all, fit this requirement (especially Plastic Backed are ABDL). There are 2, maybe three suppliers in Australia? No one sees them, and I don't show them off. I would be so embarrassed if someone saw me in public (it would offset my Agrophobia conditions again as it was when I had a foley bag holder strapped to my leg while wearing shorts as it was getting too hot here in Australia for pants an Elderly Lady jokingly stated she could see my underwear my Catheter bag as well as the connections and hoses occasionally leak or get tangled into furniture that was the last call so I call urology and asked about the open Cath (foley)into diaper which they had first to ask my urologist.
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Hi all People must be getting sick and tired of me (sorry, my autism and trying to get all the info I can, as well as no professional support regarding Diaper information, as most professionals in Australia, have no idea other than the standard crappy cheap cloth-backed medical) even less knowledgable on plastic-backed as 98% of diapers here are cloth backed. I am trying to find a good, not so much noticeable day diaper. Needs 4 Tape (I prefer hook and loop/velcro): I never used tapes and was forced to use cloth. I Backed from (2009 to 2023) until I found a supplier of Bambino, which will no longer be distributed here. 5000ml+ (I try to change 4-5 hours). I am not sure how hygienic it is. I will ask the urology nurse on Monday. Plastic Backed Nice to have Wetness indicator to know when I am close to capacity (as I have no feeling of bladder as well as everything is compressed with plastic pants and snapped onesie) Please reply below with which brands may apply to me based on their experiences. Tykable Lil Builders (not sure how noticeable under clothes they are) Rearz Mega Barnyard (11000ml sounds like a night diaper and too thick) ABU Dinorawz (Stock issues I am reading in forums as well as communication issues regarding invoicing) BeDry Incontrol EliteCare (10000ml sounds like a night diaper and too thick) Am I missing any? Thanks
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Hi all If I understand him correctly, Derek from Down UnderCare/Littles Down Under might be getting out of supplying us with Bambinos, and he needs more capacity. I am looking for a plastic-backed (as I am allergic to something in all cloth-backed disposables as well as the fabric-backed disposables that hold up as well or hold as much) I am newly Fully urinary incontinent due to medical reasons and intervention (NOT ABDL Reasons) due to issues with full retention and issues with Foley and ISC see https://www.adisc.org/forum/threads...incontinent-by-urologist.192665/#post-2572744 (THIS IS UNDER MEDICAL / UROLOGICAL SUPERVISION) Features I am After Wetness indicator so I know when to change so I get total usage but not leakage (DUE TO GOVERNMENT FUNDING OF 6 PER DAY) and so I don't have to use more than needed due to environment 4 Tapes Bigger capacity, so less changes, so better cost per change Also, I occasionally leak at night due to Severe Sleep Apnea and Noctuna (diagnosed) This is my current usage. During the day, I use Magnifico https://downundercare.com.au/index.php/product/bambino-magnifico-adult-nappies/ (discontinued), which I still have supplies off but running low 4500ml with a booster https://littlesdownunder.com.au/shop/rearz-incontrol-booster-pads-unscented/ 1300ml At night, I use https://littlesdownunder.com.au/shop/bloomeez-adult-nappy/ (5000ml), which I believe is the owner. Said is being discontinued)Current Day Nappy combo x4-5 Cost per carton of Magnifico 173 carton / 40 nappies per nappy = 4.33 per nappy (DISCONTINUED) Cost per carton of booster 166.50 carton / 120 per booster = 1.39 per booster The cost per charge is $5.72 per change. Current Night Nappy combo (need a double booster or higher capacity booster due to leaks) Cost per carton of Bloomeez 173 carton / 40 nappies per nappy = 4.33 per nappy (Getting Discontinued) Cost per carton of booster 166.50 carton / 120 per booster = 1.39 per boosterCost per carton of booster 166.50 carton / 120 per booster = 1.39 per booster Cost per change per change $7.11 Only three stores sell plastic-backed in Australia. Derek @ Littlesdownunder.com.au / downundercare.com.au Abuinverse au.abuniverse.com myabdlsupplies myabdlsupplies.com.au
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How much absorption is enough - or too much?
sjaeger172004 replied to John Davis's topic in General Topics
Do you have a medical source so I can show my nurse as well as use that argument for the disability funding I get? Thanks -
Been made fully urinary incontinent due to foley issues
sjaeger172004 replied to sjaeger172004's topic in General Topics
Ah thanks wasnt sure -
Been made fully urinary incontinent due to foley issues
sjaeger172004 replied to sjaeger172004's topic in General Topics
Hi I had leg sleeves unfortunately, only a low selection I can get in Australia and I trialled those 😢 1st Dr outside of the hospital when the botox completely closed my bladder and needed IDC said I could have it drain (it was late March early April) but didn't become full time cathed until July, and I trialed all different solutions until I rang up urology the other week and asked and I did ask several time if any medical reasons I couldn't and several times asked about UTI, their response was any issues straight to ED or their hospital dept during office hours if I could get to their office. I wear plastic pants over mine incase of leaks (thankfully I had a few slight dampness even with boosters) Would a Tena wet wipe do the trick while out? Thanks -
I currently wear https://littlesdownunder.com.au/shop/bloomeez-adult-nappy/ due to plastic-backed as well as fitted Bambino fitted my needs with ease of velcro enclosure but now I am fully incontinent and need a larger capacity. As I need something more practical, do you have any recommendations? I am a 42inch Larger capacity at night (plastic-backed) Same or slightly larger capacity during the day (prefer indicator so I can tell when the diaper needs changing) Also, I would like a wetness indicator (to know when to change) as I am new to full incontinence as I was overfill incontinent (with bleeding hammeroids) The bambino no longer fits my needs, as I recently became fully urinary incontinent. Unfortunately, professionals here in Australia don’t know as much about products, and only two stores in Australia sell plastic-backed (ABDL-focused) ABU Australia and Down Under Care/Littles Down Under (a third-party importer had issues with stock in the past, which thankfully always have enough protection in stock). Only two stores that sell Plastic backed diapers in Australia are unfortunately ABDL Focused 😢 mainly just depends Tena,Abena etc cloth backed which I am allergic to (hives, excessive sweating) as well as sensory issues due to my Autism (hypersensitive to smell, sags etc) I am working with a company that have 2 nurse practitioners with highly disabled autistic children that didn't know Australia had plastic backed until I showed them mine when they did my assessment for my government disability funding (I get all my disability needs funded incl Incontinence) but still need to be cautious of pricing if I can. Many thanks
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1st I would like to express I am not a fetisher (I don't know enough about relationships and sex for one) as well as I don't understand the turn on (I have tried to see it but yeah the fetishes doesn't do it for me) as well as I have autism so my wording may be off-putting but I am 100% truly incontinent since spinal issue in 2009 and only found out the fetishes around nappies/diapers when I had to look for information and support to help myself mentally and information about products as I had no professional provide me with any info in Australia 😢 About a week ago my Urology I have since been permanently Catheterised with a leg bag until recently when I was having too many issues with the bag slipping (to the point it was happening in public, and people commented that I was wearing shorts because it was heating up in Australia). So, my support worker and I spoke to my urologist (the head of urology and a professor). He agreed since I had issues with leg bags as well as my bladder not handling pressure if I have a closed valve (issues with pain when in hospital), they decided to have me have an open valve leak directly into a pad (taped product) as no medical issues (and I asked them several times if issues with UTI they said no) with it as well as I see them every month (urologist nurse at the hospital) for monthly foley changes as no funding for a community nurse. I do not have coordination (autistic, ADHD and essential tremors in my hands and bending issues). Wear would be the best place to position the foley in the pad for a male to get full use. Should it be in the middle of the middle so the middle gets it rather than just the front? Also, I will finally work with a nurse practitioner to work on my disability needs incl fluid intake (as I have been dehydrating myself since 2009 due to spinal issue course continence issues, but since the foley disabled the bladder, I can drink water as before it was playing hectic on my bladder but now starting to drink mostly water as well as continence care timed changes, looking at current products if still fulfills my needs (well night time I now have to wear a booster in a bambino until I find something more practical (as government pays for all my disability and continence needs) unfortunately there are only 2 suppliers in Australia that does plastic backed diapers. Which are ABDL focus companies https://au.abuniverse.com/ https://littlesdownunder.com.au/ I currently wear these https://littlesdownunder.com.au/shop/bloomeez-adult-nappy/ I have had to change from bambino ultra stretch to bambino magnifico due to supply and discontinue issues as downundeecare/littlesdownunder (same company is the only distributor of bambino in Australia and well I have become fully urinary incontinent recently and just starting to learn. I am after a plastic backed diaper larger capacity than the bloomeez for bed time and perhaps smaller capacity with indicator during the day as I wet a lot due to nocturna and severe sleep apnea (treated with cpap) and on seroquel and melatonin (for sleep) bipolar and Autism. I don’t care if they have designs or white as no one will see them even if they ride up as I weather a crutch snapped onesie to keep everything in place as well as to help my lower spine in cold winds. No this is not a fetish post Many thanks