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AUG168

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Anyone else have incontinence associated with BPH?

It all started 5 years ago when I would leak after urinating (PMD). Then I had COVID and thought I had a UTI. Turns out I have OAB, all associated with an enlarged prostate. Initially I was told I had prostate cancer but tests proved otherwise thankfully.
 

It started off with wearing shields then eventually pads. Things have progressed to where I use 2-3 pads a day or a pullup. At night I use trading pants for comfort. 
 

I tried flowmax and Cialis. Flowmax made me dizzy and Cialis gives me leg pains.

I really don't want things to get worse but I'm trying to control what I can. Would like to hear from others that have BPH.

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Not exactly, though I was on Flowmax and calis before (for the usual "see if it works", that didn't) . And I did have a blockage in my prostrate. Had a turp that wasn't enough to open it, so they completely took out my prostrate. 

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5 hours ago, Slomo said:

Not exactly, though I was on Flowmax and calis before (for the usual "see if it works", that didn't) . And I did have a blockage in my prostrate. Had a turp that wasn't enough to open it, so they completely took out my prostrate. 

That's probably in my future. Did you regain continence?

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9 hours ago, AUG168 said:

Anyone else have incontinence associated with BPH?

It all started 5 years ago when I would leak after urinating (PMD). Then I had COVID and thought I had a UTI. Turns out I have OAB, all associated with an enlarged prostate. Initially I was told I had prostate cancer but tests proved otherwise thankfully.
 

It started off with wearing shields then eventually pads. Things have progressed to where I use 2-3 pads a day or a pullup. At night I use trading pants for comfort. 
 

I tried flowmax and Cialis. Flowmax made me dizzy and Cialis gives me leg pains.

I really don't want things to get worse but I'm trying to control what I can. Would like to hear from others that have BPH.

@AUG168:  I need to copy and paste my response to your welcome message here, and make some adjustments from your additional notes above.  So, from the welcome reply, with some edits:

I also had early on set of BPH and with my slightly high PSA numbers opted for watch and wait.  After trying the medications for a 90 day trial, I told the doctor I wasn't refilling them due to side affects....   Unfortunately, I waited a bit long and end up with reduced bladder capacity from the effects of having BPH for a while before having surgical treatment.  From your comments above, you have also been reviewing your PSA numbers, and I assume you have had a (rectal?) needle biopsy of the prostate that resulted in not finding cancer.  I have not had the needle biopsy and instead rely on the PSA and Free PSA numbers along with the fact that genetically, we tend to "grow" things (like polyps, and early onset BPH), but don't have cancer.....

I see your comments in this thread about heavier dribbling (light incontinence), I assume along with the OAB diagnosis the Urologist suspects the bladder wall has thickened and muscle strengthened.  If that is the case, you may already be in the same boat I am with reduced bladder capacity. I also had developed a light PMD and I think I also have some like leakage now from OAB urges.

If you are only aware of TURP type procedures for BPH issues, please look into the minimally evasive techniques that are currently available.  Depending on your urologist, they may not offer them and you might have to find a different one to review those options.  Personally, I choose to get the Rezūm procedure.  There are other minimally evasive procedures now available.  One issue with using the procedure I did is you don't get a tissue sample to test for cancer.  In my case, I'm low risk of cancer, and even though my PSA numbers have returned to "above normal" for what is the "normal expected range" my Urologist calls my numbers as "supported by the size of my prostate", so not out of the ordinary for the large size.  And we continue to monitor the trend lines of my PSA and Free PSA numbers about every six months.  As to the Rezume procedure, it only reduces the prostate around the urethra and leaves the rest in tact.    I had my procedure shortly after the two year follow up from the original experimental procedures was published and the procedure was cleared for normal practice.  (It was interesting to get the diagnostic code used, needed to clear the procedure with my insurance, as it was very new at the time....)  A piece of me wishes the procedure had been available a few years earlier AND that I noticed the slow decrease in bladder capacity over time earlier.

Feel free to ask me questions.  And I'm sure others can speak to other procedures that they have have reviewed or had used.

My day time issues don't appear to be as bad as you documented, and I'm post the Rezume procedure by a few years.  However I think recently things are starting to act up again....

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9 hours ago, AUG168 said:

That's probably in my future. Did you regain continence?

 No. The meds would have never worked on me because at 30-40 years old I didn't have an enlarged prostrate. I was only on them because of inept urologists who didn't want to figure out my underlying issue. Instead they just put me one pill after another to "see if it helps". 

My problem was neurological, likely from an L5-S1 spinal injury. When I finally convinced my urologist to just remove my malfunctioning muscle, it took a half-dozen sphincterotomy surgeries to do so. Except the repeat surgeries caused a large stricture part way in my prostrate. So I had a prostrate blockage, just not from an enlarged prostrate. So of course it had to be removed too (along with part of my urethra).

On the plus side, I won't have to worry about prostrate cancer or bph in a other 15-20 years.

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  • 1 month later...

So I have BPH too but my continence problem comes from multiple herniated discs. I have also tried Tamsulosin (Flowmax). This rises the Qavg maybe 1-2 ml / s and the Qmax perhaps for  3ml / s. In consequence, this has lowered the residual urine - which was then with 150ml but still high. 
How ever - in the end, I said goodbye to it again, because the remedy was rather counterproductive. Because the flow was better, there were also more frequent problems with the aid. In addition, it caused me diarrhea more often. That did not work at all for me because I also have difficulties with holding thin stools. 

With a Qavg of about 10 ml/s on, I am still in a range where I can wait. I think if it goes below 6  I will think about Rezum or something similar. Until then, I'd rather keep my hands off it.

So my suggestion would be: Do a regulary Uroflow and let the doc check the thickness of the bladder wall with ultrasound. Keep in mind, this is only possible with a filled bladder. If both is fine - there nor reason to worry about.  

I would delay a correction - whether TURP Rezum or whatever - as long as possible. None of the procedures are really sustainable in the long run and usually need to be repeated after 5-7 years - sometimes even earlier. Each time it gets worse and the risk of incontinence not going away afterwards increases. 

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6 hours ago, John Davis said:

It has been said that all men will have prostate problems if they live long enough.

-John

I've had a urologist claim all men would have prostate cancer if they lived long enough.....  However most men won't die from that.

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