MichaelD

Well, since I learned that the bladder needs a minute more to spasm when I roll to the side in stead of getting up I’m mostly able to use a bed bottle. So normally I don’t sleep in diaper if I’m at home and I’m pretty happy that at last this still works…

To be honest - I wonder every time why people telling me that incontinence aids are so embarrassing. I’m incontinent for round about 6 years now and my real problem was to find the right aid that keeps my trousers dry and is still discreet and comfortable to wear. For me it was never a question of the aids but of the incontinence itself that is and was hard to accept. I tried really a lot of things to get rid of that shit and was at last partly successful until old spine problems flame up again and make a cure pretty impossible. I think you can adopt to a lot of things and everything that doesn’t heart is easy to adapt (especially compared to my back pain)…

Yes, so I have them meanwhile too... Somehow embarrassing but just sitting it can happen to me that something leaks. So I have in the car and on my office chair now also washable chair pads. Since they are black they are at least not so much noticeable.

Well - it can be a bit complicated, but so far it has always worked somehow. When I know that a urine sample is needed, I try to drink as much as possible two hours beforehand to arrive with a reasonably full bladder. The problem with me is to get something out when the bladder is not really full because I feel urge to urinate if at all only very late and then it also does not work with the spontaneous urination. Somehow I have almost always managed with a little time, abdominal pressure and a few times to stand up and sit down. In case of doubt, they have to get it out with a catheter, which is rarely a problem with 200ml of residual urine ...Fortunately, I have not had diarrhea during the examinations so far, otherwise it would probably have been even more difficult...

So I think that there are very different views on the subject. There was once a patient survey in England where I just can not find the link, but the result was that the fewest patients preferred the term "diaper". You can certainly set up a lot of theories about why this is so - but the fact is that it probably does not come from the nursing staff. In Germany, I learned that you should use the term that the patient uses. That's how it's usually done here in verbal communication. In the diagnoses, you read all sorts of things - but mostly the abbreviation IKM, which stands for incontinence aid.

I understand your feeling here and I also had them first - however - not every disability is visible and chronically bladder or bowel problems are a disability that give you the right to use this toilets. If really someone‘s waiting then it‘s the same as with all other toilets. Interestingly I had never problems with people who are in a wheelchair. The really agressive ones are normally elderly persons who even can walk and don’t understand that incontinence is not only restricted to elderly people… In such a case I just ask them why they have a problem - I have to wear pad‘s because I can’t hold it anymore and if they can’t hold it for these minutes then they better use them too…

So the discussion about whether that is OK or not I actually already had, because there are a few wise guys who believe if I do not go in there with a wheelchair I am not allowed to... Fortunately, this discussion is at least in Europe relatively quickly ended. Most disabled toilets are only accessible with a special key (Euro WC Key) which you can only get with a suitable disabled pass or a suitable medical certificate (chronic bowel and bladder diseases). I usually use the toilet also because there is a sink in it and you can clean yourself.

I think these calculation are a nice reference point - but you can see that yourself. If you don't take any urine-discoloring drugs now, you can simply look at the color of your urine. Almost transparent: Too much liquid Light yellow: enough liquid Dark yellow: too little liquit

So I get two boxes delivered every two months - they just sit on top of my bedroom closet. One package I always take down into the bed box. For daily use, a few of them always go into the bathroom cabinet. I don't bother hiding them. I mean - the big trash can in the bathroom is at least as treacherous.

Hello Slomo, it really depends on what you want to see on the ultrasound. In your case, they only checked to see if there was any residual urine after a uroflow. With or without uroflow, this is the standard procedure for BPH or other obstruction problems. For example, to measure the thickness of the bladder wall or to look for trabeculations in the bladder, the bladder must be full, otherwise you can't see it on ultrasound. Of course, uroflow would not be possible either (at least unless you refill the bladder with tempered salt water - which is not usually the case). So it is indeed a good idea to come with a filled bladder - otherwise some diagnoses are not so easy. Another reason is that a urine sample is usually taken to check for urinary tract infections and other problems. Again, it is advisable to come with a full bladder, as the sample should be taken in the middle of the urine stream - otherwise false positives often occur. If you only have 100 ml left in it, that could also be a problem. I think - if Dandilon have concerns it‘s probably better not to drink not 30 but 20oz and come with a half filled bladder then with a empty one 😉

Sorry - I was not able to edit the last post anymore. Just read that it is a UTI - so this is most likely the reason and there‘s nothing to worry about. If the UTI is cured out and the problem still exists, the my first post might be helpful. More over I don‘t think that your detrusor have a problem - in this case you would have problems over the daytime too.

Hello Dandelion, I would not see it quite so drastically as Slomo - but as he has already said: It is about finding out what is actually the cause of the problem. Bedwetting is unfortunately a very difficult subject - although it affects more people than you might think. The causes are often outside the field of urology if not a simple bladder infection is the reason. The most common causes, besides psychological problems and hereditary predisposition, are disturbances in the production of the ADH hormone which, among other things, reduces the production of urine during sleep. In addition, there are some other diseases that can cause this - but they are rather rare. If the bedwetting does not disappear and the urological standard diagnostics did not find any causes, my recommendation would be to first check the hormone status and especially the AHD. However, this only works to a limited extent with a normal blood sample taken during the day. Much more informative can be the diagnosis in a sleep laboratory, where blood can be taken during the night to see how the hormone status changes. In addition, a number of other causes can be uncovered that may be the reason for the problems. What did the doctor say about the issue? best regards Michael

Yes, of course - I usually ask my GP first. Maybe it's something special in Germany, but we have something called the "Hausärzte Programm." That's basically a program run by the health insurance companies, where the GP (or rather the specialist in general medicine, because you need a special qualification for that) takes on the role of coordinating doctor and suggests which specialist should be involved. One decides for a doctor who should take over this task and then stays with him. This is a good thing when you have found a good doctor, because he collects all the diagnoses, medications and recommendations of the specialists and can then see, for example, whether medications prescribed by different specialists may be contraindicated. In addition, he has a complete overview of the situation and can speed up the diagnosis, for example, by involving several specialists at the same time. In my case it was quite practical, because while the urologist with his BPH treatment did not really get further, I had neurological examinations and a referral to neurourology / neurochirogia from neurologists already after several MRI's, which then after the UD and a few other examinations also brought the corresponding depressing results. If I had waited for the urologist alone, it would probably have taken years and my back problem would probably have gotten worse.

So I have BPH too but my continence problem comes from multiple herniated discs. I have also tried Tamsulosin (Flowmax). This rises the Qavg maybe 1-2 ml / s and the Qmax perhaps for 3ml / s. In consequence, this has lowered the residual urine - which was then with 150ml but still high. How ever - in the end, I said goodbye to it again, because the remedy was rather counterproductive. Because the flow was better, there were also more frequent problems with the aid. In addition, it caused me diarrhea more often. That did not work at all for me because I also have difficulties with holding thin stools. With a Qavg of about 10 ml/s on, I am still in a range where I can wait. I think if it goes below 6 I will think about Rezum or something similar. Until then, I'd rather keep my hands off it. So my suggestion would be: Do a regulary Uroflow and let the doc check the thickness of the bladder wall with ultrasound. Keep in mind, this is only possible with a filled bladder. If both is fine - there nor reason to worry about. I would delay a correction - whether TURP Rezum or whatever - as long as possible. None of the procedures are really sustainable in the long run and usually need to be repeated after 5-7 years - sometimes even earlier. Each time it gets worse and the risk of incontinence not going away afterwards increases.

So actually, at most the urologist is interested in this topic. However, there is a very simple reason for this: The S2 guidelines state that a supply with pads is to be preferred. So when you arrive with a diaper, he is amazed and asks why. I also had a short conversation about this topic at the beginning. But that was quickly explained. The whole point is that the pants stay dry and after the first UD there were no more questions... Otherwise, this is usually overlooked. Once a dermatologist had looked a bit irritated when I to the skin cancer screening with her true - She had probably the LUTS on the questionnaire overread or expected something else and then first apologized :-). But that was actually also until now the only time that someone has reacted astonished.

Hi Brian, also swim diapers for kids can’t hold urine. But to be honest - I think no one cares about that. Everybody is peeing in the pool… Just make shure that #2 don‘t comes out, because this means that (if it is a public pool) they have to close it and run a disinfection cycle. The only thing that actually works are so-called therapy suits. These are fitted neoprene suits that are constructed like dry suits and under which you can wear a normal diaper. The things are very expensive and from my point of view the absolute overkill. Many who have such a problem help themselves in case of doubt with anal plugs. Basically, you should just go to the toilet and empty your bowles somehow before you go into the water. That is usually enough.

I think I remember seeing a study on this topic. I don't remember if it was on NAFC or in Great Britain. There was a vote on several terms - diapers were definitely not among them. Here in Germany, I once learned: When in doubt, use the term that the patient uses. Otherwise, terms like pad, slip, protective pants are common. Abbreviations like IKM (German abbreviation for incontinence aids) are also popular. However, I don't see any stigmatization, just a great uncertainty about how to deal with the term. Many patients just don't like to hear the word diaper. That's why they try to find something less drastic. But this wish comes from the patients and not from the medical staff. They just have to endure the rejection they experience when in doubt about the wrong choice of words.

I don't know anyone who is willing to accept his incontinence. At some point, when you have tried everything to get rid of it again, you may come to terms with the problem willy-nilly or weigh the pros and cons of treatment against management. Patients and physicians are primarily interested in curing the underlying condition. With the aids the physicians have as a rule little to do and can there also not well advise. They take note of the maximum b.z.w. ask how one handles the problem at present around given case a prescription to issue if that is necessary for the health insurance. To be honest, I did not and do not care what the doctor calls the aid. My expectation from him is that he finds a solution for my health problem and does not compensate it with aids. Of course, the terms of assistive aid will come up somewhere. When in doubt, it just amused me. One guy once wrote down "incontinence-protection-pants." My first impulse was to ask him how these things are supposed to protect against incontinence... but then I refrained.... Anyway - I think the question is probably wrong. I guess it's more about whether you accept a certain aid as such for yourself. From what I've heard, this is more of a minor problem. I think the biggest problem for those affected is to have the courage to seek medical help. The shame to talk about such a problem is very big. If medical help is sought, I don't know anyone who doesn't use some kind of aid. I mean - how should it be different - you can not lock yourself in the apartment because you can no longer go shopping or work with the problem. The stigma mentioned here is probably less attached to the aids than to incontinence - especially when it affects younger people, because the prejudice that something like this only affects old people is very widespread. Anyone who is younger and is not currently in a wheelchair or has been through a pregnancy falls out of the scheme.

I think every one is different here. I don't search anymore - I am glad that after a long search I have found a aid that works. There are really only two reasons when I start again to deal with it: 1) The product will be discontinued or "worse improved". 2) Something changes in my incontinence, so that a previous product no longer fits. Of course, you can experiment a lot - but honestly - why should I do that if the product works. In addition, a product change entails many other problems. New prescriptions have to be issued, it has to be discussed with the insurance company, new expert opinions may be necessary because the costs are not covered as expected, new suppliers have to be found, and so on. For those who pay for the things themselves, this is certainly an option. If you do it with the health insurance, it is enormously time-consuming and tedious. If I invest time in the subject, then rather in educating myself and see if there is perhaps new medical possibility to fix or at least improve the problem. But in the end, I think it's important to think about something other than just health problems. That helps more in case of doubt... - just my opinion.

Incontinence is often a reason why older people eventually end up in a nursing home. I think the combination of both can be very bad. In addition, the older you get, the more difficult it becomes with chirogic interventions that might still be able to fix something. In addition, many older people often have a bad medication, so that the medication is given with contraindications that promote incontinence. If there is no relative who knows and asks, the things can be very bad for the affected person. I think with us "younger ones" that is however still something else. I am always amazed at the extensive discussion about aids. Especially with fecal incontinence, the aid plays often a subordinate role. Of course there are exceptions - but the "usual" way to deal with fecal incontinence is actually bowel management and nutrition. I myself am also urinary and fecal incontinent - but I have fecal incontinence mor or less under control except for some annoying stool smearing. There are just two essential things that you have to pay attention to: On the one hand, you have to empty your bowels somehow in the morning, and on the other hand, the stool must always have a "normal" consistency. The latter can be controlled relatively well through diet (fiber if too solid and flosamens if too thin). Of course, it also happens to me that I get unexpectedly thin stool and that is then quite a mess - no matter what I wear for aids but that is exactly why it is so important to keep these cases within limits. I think it helps much more to deal with how to get a proper bowel management than frantically looking for aids that survive a load of diarrhea. cu Michael